Akpinar Pinar, Aktas Ilknur, Unlu Ozkan Feyza, Atici Arzu, Yilmaz Kaysin Meryem, Cambekli Kubra
Department of Physical Medicine and Rehabilitation, Fatih Sultan Mehmet Training and Research Hospital, Istanbul, Turkey.
North Clin Istanb. 2021 Dec 31;8(6):545-553. doi: 10.14744/nci.2021.32068. eCollection 2021.
The purpose of the study is to explore the rehabilitation status of children with cerebral palsy (CP) and anxiety level of their caregivers during the Coronavirus disease-2019 (COVID-19) pandemic.
Caregivers of children with CP who were being followed up in our outpatient CP clinic were contacted between May 28 and June 26, 2020. Two hundred and six caregivers who voluntarily agreed to participate were administered the State-Trait Anxiety Inventory and were questioned about the rehabilitation status of their children. Demographic data, other health problems, Gross Motor Function Classification System, and Manual Ability Classification System levels of children were recorded from their files.
All children were at home with their families during the pandemic. Their mean age was 9.58±3.84 years. One hundred and ninety-nine children were going to the rehabilitation center before the pandemic, only three children went to the rehabilitation center twice a week during the pandemic period. The anxiety level of all the caregivers was found to be high. Trait anxiety of the caregivers who did not perform home exercise to their children were found to be statistically significantly higher than those who performed exercise (p<0.05).
Rehabilitation strategies should focus on reducing anxiety level in caregivers of children with CP and effective homecare therapy techniques should be acquired by the caregivers.
本研究旨在探讨2019年冠状病毒病(COVID-19)大流行期间脑瘫(CP)患儿的康复状况及其照料者的焦虑水平。
2020年5月28日至6月26日期间,联系了在我们门诊脑瘫诊所接受随访的脑瘫患儿的照料者。206名自愿同意参与的照料者接受了状态-特质焦虑量表测试,并被问及他们孩子的康复状况。从他们的档案中记录了人口统计学数据、其他健康问题、粗大运动功能分类系统以及患儿的手功能分类系统水平。
大流行期间所有患儿都与家人在家中。他们的平均年龄为9.58±3.84岁。199名患儿在大流行前会去康复中心,在大流行期间只有3名患儿每周去两次康复中心。发现所有照料者的焦虑水平都很高。未对孩子进行家庭锻炼的照料者的特质焦虑在统计学上显著高于进行锻炼的照料者(p<0.05)。
康复策略应侧重于降低脑瘫患儿照料者的焦虑水平,照料者应掌握有效的家庭护理治疗技术。