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Anchoring Patient Voices to Shape the Future of Patient-reported Outcomes.

作者信息

Grant-Orser Amanda, Guler Sabina A

机构信息

Division of Respirology, Department of Medicine, University of Calgary, Calgary, Alberta, Canada; and.

Department for Pulmonary Medicine, Allergology, and Clinical Immunology, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland.

出版信息

Ann Am Thorac Soc. 2024 Dec;21(12):1651-1652. doi: 10.1513/AnnalsATS.202410-1028ED.

DOI:10.1513/AnnalsATS.202410-1028ED
PMID:39601505
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11622821/
Abstract
摘要
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/132f/11622821/d498b4f4cbaf/AnnalsATS.202410-1028EDUf1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/132f/11622821/d498b4f4cbaf/AnnalsATS.202410-1028EDUf1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/132f/11622821/d498b4f4cbaf/AnnalsATS.202410-1028EDUf1.jpg

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Patient-Reported Outcome Measures in Cancer Care: An Updated Systematic Review and Meta-Analysis.癌症护理中的患者报告结局测量：更新的系统评价和荟萃分析。
JAMA Netw Open. 2024 Aug 1;7(8):e2424793. doi: 10.1001/jamanetworkopen.2024.24793.
2
Interstitial Lung Disease Patients' Global Impressions of Symptoms, Severity Ratings, and Meaningfulness of Changes Over Time.间质性肺疾病患者对症状、严重程度评分的全球印象，以及随时间变化的可衡量性的意义。
Ann Am Thorac Soc. 2024 Dec;21(12):1670-1677. doi: 10.1513/AnnalsATS.202405-457OC.
3
Use of Ecological Momentary Assessment to Measure Dyspnea in COPD.
应用生态瞬时评估测量 COPD 患者呼吸困难。
Int J Chron Obstruct Pulmon Dis. 2024 Mar 28;19:841-849. doi: 10.2147/COPD.S447660. eCollection 2024.
4
Validation of a Dyspnea Visual Analog Scale in Fibrotic Interstitial Lung Disease.纤维化间质性肺病呼吸困难视觉模拟量表的验证。
Ann Am Thorac Soc. 2024 Jul;21(7):1007-1014. doi: 10.1513/AnnalsATS.202307-658OC.
5
Cough Severity Visual Analog Scale Assesses Cough Burden and Predicts Survival in Idiopathic Pulmonary Fibrosis.咳嗽严重程度视觉模拟量表评估特发性肺纤维化的咳嗽负担并预测生存率。
Am J Respir Crit Care Med. 2024 May 1;209(9):1165-1167. doi: 10.1164/rccm.202311-2169LE.
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Morphine for treatment of cough in idiopathic pulmonary fibrosis (PACIFY COUGH): a prospective, multicentre, randomised, double-blind, placebo-controlled, two-way crossover trial.吗啡治疗特发性肺纤维化咳嗽（PACIFY咳嗽）：一项前瞻性、多中心、随机、双盲、安慰剂对照、双向交叉试验。
Lancet Respir Med. 2024 Apr;12(4):273-280. doi: 10.1016/S2213-2600(23)00432-0. Epub 2024 Jan 15.
7
Treatable traits: a comprehensive precision medicine approach in interstitial lung disease.可治疗特征：间质性肺病的综合精准医疗方法。
Eur Respir J. 2023 Jul 27;62(1). doi: 10.1183/13993003.00404-2023. Print 2023 Jul.
8
Understanding patient experience of chronic cough in interstitial lung disease.了解间质性肺疾病患者慢性咳嗽的体验。
ERJ Open Res. 2023 May 22;9(3). doi: 10.1183/23120541.00039-2023. eCollection 2023 May.
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