让选择发声：关于世界血友病联盟共同决策工具开发的评论

Giving Choice a Voice: Commentary on Development of the World Federation of Hemophilia Shared Decision-Making Tool.

作者信息

Valentino Leonard A, Khair Kate

机构信息

Rush University Medical Center, Hemophilia and Thrombophilia Center, Chicago, Illinois, USA.

Haemnet, London, UK.

出版信息

Haemophilia. 2025 Jan;31(1):5-6. doi: 10.1111/hae.15133. Epub 2024 Dec 4.

DOI:10.1111/hae.15133

PMID:39632567

Abstract

The shared decision-making (SDM) tool developed by the World Federation of Hemophilia (WFH) provides a clear and concise overview of the process by which people with haemophilia (PwH) can collaborate with their healthcare professionals (HCPs) to engage and arrive at a therapeutic decision. This tool will be useful for all people with all bleeding disorders, not just PwH.

摘要

世界血友病联盟（WFH）开发的共同决策（SDM）工具清晰简要地概述了血友病患者（PwH）可与医护专业人员（HCPs）合作以参与并达成治疗决策的过程。该工具对所有出血性疾病患者都有用，而不仅限于血友病患者。