Rinderknecht Fatuma-Ayaan, Naik Haley
University of California San Francisco School of Medicine, San Francisco, CA, USA.
Department of Dermatology, University of California San Francisco, 2340 Sutter Street, S429, San Francisco, CA, 94143-0808, USA.
J Racial Ethn Health Disparities. 2024 Dec 9. doi: 10.1007/s40615-024-02252-1.
Hidradenitis suppurativa (HS) is a debilitating and understudied inflammatory skin disease that disproportionately impacts Black Americans. The objective of this study was to explore the role that race and ethnicity may play in HS patients' perceptions of physician bias and their care quality. We administered a cross-sectional anonymous online survey to individuals with HS from June 13 to 30, 2021. Items from the Commonwealth Fund 2001 Health Care Quality Survey were employed to evaluate whether participants felt they were judged based on their race or ethnicity. Data was analyzed utilizing the test of equal or given proportions for assessing statistical significance with a threshold p-value < 0.05. The survey received a total of 1040 responses. The cohort was majority female and racially and ethnically diverse, with participants from six continents. Overall, 15.2% (136/894) of respondents reported feeling that they would receive better care if they were of a different race/ethnicity, and 13.6% (122/894) felt their primary HS provider treated them unfairly based on their race. Participants who belonged to minority groups more often reported feeling that they would receive better medical care if they were of a different race/ethnicity and felt that they were treated unfairly due to their race/ethnicity compared to White participants. These findings highlight the need to better understand the complex systemic and interpersonal factors at play in interactions between HS patients and healthcare providers to ensure that patients can receive much-needed care.
化脓性汗腺炎（HS）是一种使人衰弱且研究不足的炎症性皮肤病，对美国黑人的影响尤为严重。本研究的目的是探讨种族和族裔在HS患者对医生偏见的认知及其护理质量方面可能发挥的作用。我们于2021年6月13日至30日对HS患者进行了一项横断面匿名在线调查。采用了英联邦基金2001年医疗保健质量调查中的项目来评估参与者是否觉得他们因种族或族裔而受到评判。利用相等比例或给定比例检验对数据进行分析，以评估统计学显著性，阈值p值<0.05。该调查共收到1040份回复。该队列中女性占多数，种族和族裔多样，参与者来自六大洲。总体而言，15.2%（136/894）的受访者表示，如果他们属于不同的种族/族裔，会感觉能得到更好的护理，13.6%（122/894）的受访者觉得他们的HS主治医生因他们的种族而不公平地对待他们。与白人参与者相比，属于少数群体的参与者更常表示，如果他们属于不同的种族/族裔，会感觉能得到更好的医疗护理，并且觉得自己因种族/族裔而受到不公平对待。这些发现凸显了有必要更好地理解HS患者与医疗服务提供者互动中复杂的系统和人际因素，以确保患者能够获得急需的护理。
