Alizadeh Zahra, Rohani Camelia, Rassouli Maryam, Ilkhani Mahnaz, Hazrati Maryam
Department of Medical-Surgical Nursing, School of Nursing & Midwifery, Iran University of Medical Sciences, Tehran, Iran.
Department of Health Care Sciences, Palliative Care Research Center, Marie Cederschiöld Universitry, Campus Ersta, Stockholm, Sweden.
Asia Pac J Oncol Nurs. 2024 Sep 4;11(11):100583. doi: 10.1016/j.apjon.2024.100583. eCollection 2024 Nov.
Early integration of palliative care into home health care services is essential for cancer patients to improve their Quality of Life and reduce their health care costs. Thus, this study aimed to develop a home-based palliative care model for adult cancer patients in Iran.
This is a health policy and systems research based on the World Health Organization guide. It consists of four phases; an integrative review, a qualitative study through individual semi-structured interviews ( = 37), and one focus group interview ( = 8), integrating these results in the third phase and generating model indicators. In the last phase, the evaluation of the importance of the indicators and the validation of the model were carried out during four classic Delphi rounds.
Barriers to home-based palliative care were extracted from the first phase, and then 22 categories in eight pillars emerged from the qualitative phase. The indicators created for the model from two phases were integrated in the third phase ( = 118). After the four-round of the Delphi, a conceptual model for home-based palliative care in cancer patients, including 92 indicators within eight pillars was created.
Although this model was designed for our society, it can be utilized as a useful guide in other similar societies to design practical models and innovative programs to provide home-based palliative care in cancer patients. The application of the model in predicting different outcomes should be investigated in future trials.
将姑息治疗早期纳入家庭医疗服务对癌症患者改善生活质量和降低医疗成本至关重要。因此,本研究旨在为伊朗成年癌症患者开发一种居家姑息治疗模式。
这是一项基于世界卫生组织指南的卫生政策与系统研究。它包括四个阶段;综合综述、通过个人半结构化访谈(n = 37)和一次焦点小组访谈(n = 8)进行的定性研究,在第三阶段整合这些结果并生成模型指标。在最后阶段,在四轮经典德尔菲法中对指标的重要性进行评估并对模型进行验证。
在第一阶段提取了居家姑息治疗的障碍,然后在定性阶段出现了八个支柱下的22个类别。在前两个阶段为模型创建的指标在第三阶段进行了整合(n = 118)。经过四轮德尔菲法,创建了一个癌症患者居家姑息治疗的概念模型,包括八个支柱下的92个指标。
尽管该模型是为我们的社会设计的,但它可作为其他类似社会的有用指南,用于设计实用模型和创新项目,为癌症患者提供居家姑息治疗。该模型在预测不同结果方面的应用应在未来试验中进行研究。