Nielsen T Rune, de Mendonça Alexandre, Frölich Lutz, Engelborghs Sebastiaan, Gove Dianne, Lamirel Daphné, Calia Clara, Waldemar Gunhild
Department of Neurology, Danish Dementia Research Centre, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.
Department of Psychology, University of Copenhagen, Copenhagen, Denmark.
Int J Geriatr Psychiatry. 2024 Dec;39(12):e70034. doi: 10.1002/gps.70034.
There is no European consensus on good clinical practice for timely diagnosis and culturally appropriate care of people with dementia from minority ethnic groups. Despite significant advances in culture-sensitive dementia diagnostics, little is known about how this has been implemented in clinical practice. The aims of this follow-up survey were to explore current practices for assessing dementia in patients from minority ethnic groups in Europe and to determine whether barriers in access to specialized dementia services have changed during the last 14 years.
A cross-sectional online survey was conducted in the European Alzheimer's Disease Consortium (EADC) in June 2023. The survey utilized questionnaires from a previous EADC survey from 2009 and focused on different points in the clinical assessment of dementia in patients from minority ethnic groups.
Thirty-three centers from 15 countries participated in the survey, of which 21 were the same as in the 2009 survey. Patients from minority ethnic groups were seen on a regular basis in 91% of these centers, which was a significant increase compared to 2009 (69%, p = 0.04). Despite perceived clinical expertise increasing, implemented strategies for bypassing cultural and linguistic barriers were sparse and communication problems and lack of adequate assessment tools continued to be the main perceived barriers in diagnostic assessment of dementia in minority ethnic groups.
Patients from minority ethnic groups are increasingly being referred for diagnostic assessment of dementia in Europe. Despite some improvements, diagnostic challenges generally remained the same as in 2009 and there is a continuous need to implement effective cross-cultural communication and assessment practices.
对于少数族裔痴呆患者的及时诊断和符合文化背景的护理，欧洲尚未就良好临床实践达成共识。尽管在文化敏感型痴呆诊断方面取得了重大进展，但对于其在临床实践中的实施情况知之甚少。这项随访调查的目的是探索欧洲少数族裔患者痴呆评估的当前做法，并确定在过去14年中获得专门痴呆服务的障碍是否发生了变化。
2023年6月在欧洲阿尔茨海默病联盟（EADC）开展了一项横断面在线调查。该调查采用了EADC 2009年一项调查中的问卷，重点关注少数族裔患者痴呆临床评估中的不同要点。
来自15个国家的33个中心参与了调查，其中21个与2009年调查中的中心相同。在这些中心中，91%的中心定期接待少数族裔患者，与2009年（69%）相比有显著增加（p = 0.04）。尽管感觉临床专业知识有所增加，但绕过文化和语言障碍的实施策略很少，沟通问题和缺乏足够的评估工具仍然是少数族裔痴呆诊断评估中主要的感知障碍。
在欧洲，越来越多的少数族裔患者被转诊进行痴呆诊断评估。尽管有一些改进，但诊断挑战总体上与2009年相同，持续需要实施有效的跨文化沟通和评估实践。
