Nielsen Jane, Johnston Carolyn
Faculty of Law, University of Tasmania, Hobart, Tasmania, Australia.
Intern Med J. 2025 Feb;55(2):329-332. doi: 10.1111/imj.16573. Epub 2024 Dec 13.
This article considers claims to ownership over genomic data and implications for data sharing and research. There are various arguments for vesting ownership in individuals, but little supporting authority. However, policies such as privacy law and informed consent provide alternative methods of protecting individuals. The conclusions highlight the importance of clear channels of communication with patients.
本文探讨了对基因组数据的所有权主张及其对数据共享和研究的影响。关于将所有权赋予个人有各种论点，但支持的权威依据很少。然而，隐私法和知情同意等政策提供了保护个人的替代方法。结论强调了与患者建立清晰沟通渠道的重要性。
