Evans Meredith, Tarasoff Lesley A, Lunsky Yona, Welsh Kate, Proulx Laurie, Havercamp Susan M, Parish Susan L, Brown Hilary K
Department of Health and Society, University of Toronto Scarborough, 1265 Military Trail, Toronto, ON, M1C 1A4, Canada.
Azrieli Adult Neurodevelopmental Centre, Centre for Addiction and Mental Health, 250 College Street, Toronto, ON, M5T 1R8, Canada.
BMC Pregnancy Childbirth. 2024 Dec 20;24(1):832. doi: 10.1186/s12884-024-07036-3.
People with disabilities experience perinatal health disparities. This qualitative study examines disabled people's experiences of labour and delivery care from a disability justice lens.
Semi-structured interviews were conducted between July 2019 and February 2020 with 31 women and transgender people aged 18-45 years with physical, sensory, and/or intellectual/developmental disabilities, who were living in in Ontario, Canada and had given birth in the previous five years.
People with disabilities described negative experiences of provider-driven, disrespectful, and discriminatory labour and delivery care that can be interpreted as examples of disability injustice and obstetric ableism. People with disabilities also described positive experiences of collaborative, respectful, and disability-affirming labour and delivery care that can be interpreted as examples of disability justice, facilitated by what feminist disability justice scholars and activists call collective access.
Collective access to labour and delivery care can improve perinatal health care for people with disabilities and promote disability justice. Reimagining care-related decision-making as an interdependent, collaborative, respectful, and disability-affirming process shared between patients and providers can help to facilitate collective access to labour and delivery care.
残疾人在围产期存在健康差异。本定性研究从残疾正义的视角审视了残疾人在分娩护理方面的经历。
2019年7月至2020年2月期间，对31名年龄在18 - 45岁之间、患有身体、感官和/或智力/发育残疾的女性及跨性别者进行了半结构化访谈，这些人居住在加拿大安大略省，且在过去五年内分娩过。
残疾人描述了由医护人员主导的、不尊重且具有歧视性的分娩护理的负面经历，这些经历可被视为残疾不公正和产科能力主义的例证。残疾人还描述了协作性、尊重性且肯定残疾的分娩护理的积极经历，这些经历可被视为残疾正义的例证，这得益于女性主义残疾正义学者和活动家所称的集体准入。
集体获得分娩护理可改善残疾人的围产期医疗保健，并促进残疾正义。将与护理相关的决策重新构想为患者与医护人员之间相互依存、协作、尊重且肯定残疾的过程，有助于促进集体获得分娩护理。
