Markoulakis Roula, Cader Hinaya, Wong Karen, Kodeeswaran Sugy, Addison Tracey, Walsh Cathy, Charles Jocelyn, Cheung Amy, Sur Deepy, Willis David, Levitt Anthony
Sunnybrook Research Institute, Canada.
University of Toronto, Canada.
Health Care Transit. 2024 Nov 27;3:100087. doi: 10.1016/j.hctj.2024.100087. eCollection 2025.
Transitional-aged youth (TAY) are at a vulnerable stage of their development in which mental health and/or addiction (MHA) issues tend to manifest and/or increase in severity. TAY also tend to find themselves subject to multiple care transitions, often resulting in sub-optimal access to MHA services. The objective of this study was to explore the perspectives of TAY, family members, and system providers regarding the supports needed by TAY and their families during transitions through MHA care.
This is a descriptive qualitative study of TAY, family, and provider perspectives on their experiences with accessing/providing MHA care and transition supports for TAY. Focus groups and interviews were conducted with 14 TAY, 26 family members, and 23 service providers. Participants were asked about their experiences with regard to barriers and facilitators to transitions in care for TAY with MHA concerns. Data was analyzed utilizing a thematic analysis approach.
Six themes emerged during data analysis: pathways to care, appropriate and comprehensive care, continuity of care, informed care, family involvement, and TAY involvement. These results provide a better understanding of the needs of TAY and their families in relation to accessing and transitioning through MHA system supports and improving MHA outcomes. They also include the views of service providers on the current state of access to and transitions through MHA care, specifically for the TAY population.
This information reveals the supports needed by TAY and their families along with the challenges created due to a lack of guidance, transition preparation, collaboration, and continuity in the MHA system. MHA providers working with TAY and families can utilize these findings to promote effective TAY and family engagement for positive transitions and care experiences.
过渡年龄青年(TAY)正处于其发展的脆弱阶段,在此阶段,心理健康和/或成瘾(MHA)问题往往会显现出来和/或严重程度增加。TAY还常常发现自己要经历多次护理转接,这往往导致获得MHA服务的情况不尽如人意。本研究的目的是探讨TAY、家庭成员和系统提供者对于TAY及其家庭在通过MHA护理进行转接期间所需支持的看法。
这是一项描述性定性研究,探讨TAY、家庭和提供者对于他们在为TAY获取/提供MHA护理及转接支持方面的经历的看法。对14名TAY、26名家庭成员和23名服务提供者进行了焦点小组访谈和个体访谈。参与者被问及他们在为有MHA问题的TAY提供护理转接方面遇到的障碍和促进因素。采用主题分析法对数据进行分析。
数据分析过程中出现了六个主题:护理途径、适当且全面的护理、护理连续性、知情护理、家庭参与和TAY参与。这些结果有助于更好地理解TAY及其家庭在获取和通过MHA系统支持进行转接以及改善MHA结果方面的需求。它们还包括服务提供者对当前获取MHA护理及通过MHA护理进行转接的现状的看法,特别是针对TAY人群。
这些信息揭示了TAY及其家庭所需的支持,以及由于MHA系统缺乏指导、转接准备、协作和连续性而产生的挑战。与TAY及其家庭合作的MHA提供者可以利用这些研究结果,促进TAY及其家庭积极参与,以实现顺利转接和良好的护理体验。