Karpinski Marta, Hircock Caroline, Gallo Lucas, Dunn Emily, Murphy Jessica, Kaur Manraj N, Thoma Achilles
Department of Medicine, University of Toronto, Toronto, ON, Canada.
Department of Medicine, McMaster University, Hamilton, ON, Canada.
Hand (N Y). 2024 Dec 27:15589447241306143. doi: 10.1177/15589447241306143.
Currently, there is no recommended standard set of outcomes to report in Dupuytren disease treatment studies, nor are there guidelines on how the outcomes themselves should be reported. This study aimed to elicit the most salient issues for patients living with and undergoing treatment for Dupuytren disease, as well as for the hand surgeons, occupational therapists, and physical therapists caring for these patients.
A qualitative, interpretive description study employing one-on-one semi-structured interviews was conducted. Ten surgeons, 12 occupational and physical therapists, and 10 patients were interviewed.
Priorities related to Dupuytren disease treatment and recovery differed by stakeholder group. Surgeons prioritized range of motion, recovery time, and recurrence. Physical and occupational therapists frequently mentioned range of motion, grip strength, activities of daily living, return to meaningful activities, wound healing, edema, lack of sensation, and pain as important treatment outcomes. Patients described extension deficit, activities of daily living, holding objects, and lack of sensation.
Through the present study, we have identified outcomes of high importance to patients, hand surgeons, occupational therapists, and physical therapists. These results can be used to inform the development of a core outcome set for Dupuytren contracture.
目前，在Dupuytren病治疗研究中，尚无推荐的标准结局报告集，也没有关于如何报告这些结局的指南。本研究旨在找出Dupuytren病患者及其治疗医生（手外科医生、职业治疗师和物理治疗师）最关注的问题。
采用一对一的半结构化访谈进行定性的解释性描述研究。访谈了10名外科医生、12名职业治疗师和物理治疗师以及10名患者。
与Dupuytren病治疗和康复相关的优先事项因利益相关者群体而异。外科医生将活动范围、恢复时间和复发列为优先事项。物理治疗师和职业治疗师经常提到活动范围、握力、日常生活活动、恢复有意义的活动、伤口愈合、水肿、感觉缺失和疼痛是重要的治疗结局。患者描述了伸展受限、日常生活活动、握持物品和感觉缺失。
通过本研究，我们确定了对患者、手外科医生、职业治疗师和物理治疗师非常重要的结局。这些结果可用于为Dupuytren挛缩制定核心结局集提供参考。
