Wissing M C, van der Wal S E I, van de Haterd M, de Reuver P R, Dick L, Engels Y, Vissers K C P, Kluivers K B, Notten K J B
Department of Obstetrics and Gynecology, Radboud University Medical Center, Nijmegen, The Netherlands.
Department of Anesthesiology, Pain and Palliative Medicine, Radboud University Medical Center, Nijmegen, The Netherlands.
J Eval Clin Pract. 2025 Feb;31(1):e14295. doi: 10.1111/jep.14295.
Chronic pelvic pain syndrome (CPPS) is prevalent and a complex multifactorial condition. The incidence is rising. CPPS patients may benefit from multidisciplinary care in a structured care pathway.
The aim of this explorative study is to give an overview of patient and healthcare provider perspectives on the current patient journey to implement these perspectives in a CPPS care pathway.
A Qualitative study was performed using nominal group technique. The participants were nine female patients CPPS and fourteen healthcare providers involved in CPPS care. The perspectives of the stakeholder groups on the individual components of the CPPS patient journey were collected.
Five overarching key topics were identified: structured start of the patient journey, execution of the patient journey, follow-up after the patient journey, administration during the patient journey, and communication and education. The following recommendations were formulated based on the prioritised points: implementation of a multidisciplinary approach from the start of the journey, adding a case manager and expanding the multidisciplinary team, providing a collaborative triage, updating the questionnaires, improving communication, developing a rehabilitation programme, and reducing waiting times.
Stakeholder focus groups using the nominal group technique was a pivotal step in the development of our CPPS care pathway. This step led to fundamental recommendations, of which a personalised treatment plan at an earlier stage in the patient journey might be the most impactful. This is now implemented, and we monitor the effects on outcomes, quality of life and patient's satisfaction.
慢性盆腔疼痛综合征(CPPS)很常见,是一种复杂的多因素疾病,其发病率正在上升。CPPS患者可能会从结构化护理路径中的多学科护理中受益。
本探索性研究的目的是概述患者和医疗服务提供者对当前患者就医过程的看法,以便将这些看法纳入CPPS护理路径。
采用名义小组技术进行定性研究。参与者包括9名CPPS女性患者和14名参与CPPS护理的医疗服务提供者。收集了利益相关者群体对CPPS患者就医过程各个组成部分的看法。
确定了五个总体关键主题:患者就医过程的结构化开始、就医过程的执行、就医过程后的随访、就医过程中的管理以及沟通与教育。根据优先要点制定了以下建议:从就医过程开始就实施多学科方法,增加一名病例管理员并扩大多学科团队,提供协作分诊,更新问卷,改善沟通,制定康复计划,以及减少等待时间。
使用名义小组技术的利益相关者焦点小组是我们CPPS护理路径开发中的关键一步。这一步骤产生了一些基本建议,其中在患者就医过程的早期阶段制定个性化治疗计划可能是最有影响力的。目前已实施这一计划,我们正在监测其对治疗结果、生活质量和患者满意度的影响。