Thanasko Florian, Nikoloudi Maria, Antoniadou Anemi Konstantina, Kouloulias Vassilis, Mystakidou Kyriaki
Department of Radiology, Pain Relief and Palliative Care Unit, Aretaeio Hospital/National and Kapodistrian University of Athens School of Medicine, Athens, GRC.
Department of Developmental Psychology, National and Kapodistrian University of Athens School of Medicine, Athens, GRC.
Cureus. 2024 Nov 27;16(11):e74597. doi: 10.7759/cureus.74597. eCollection 2024 Nov.
Introduction HIV stigma levels are high in Greece. HIV stigma hinders testing, healthcare access, and treatment adherence, often leading to non-disclosure. The discloser navigates challenges by balancing the confidant's potential reactions, ranging from rejection and discrimination to the benefits of increased intimacy and liking. However, much research focuses on either the confidant's reactions or the discloser's role, leaving gaps in understanding the full disclosure process. Methods This qualitative case study explores how HIV disclosure, stigma, and trust-building unfold, focusing on the timing, reasons, and impact of disclosing HIV-positive status on the relationship dynamics between the discloser and the confidant. Semi-structured interviews were conducted with a serodiscordant gay couple, recruited from a hospital in Greece. Results Through interpretative phenomenological analysis, we identified a Superordinate Theme: The HIV Disclosure Process with three sub-themes: (1) Navigating HIV Disclosure: Decision Making and the Disclosure Event, (2) HIV Acceptance and Stigma: Pathways to Disclosure, and (3) HIV Disclosure: Building a Foundation of Trust and Navigating Life's Broader Uncertainties. Investigator triangulation was used, enhancing the credibility and reliability of the findings. Conclusion Our case study explores HIV disclosure as a unified process, revealing that both avoidance and approach goals coexist. Avoidance delayed disclosure by withholding emotions in conflicted family relationships, yet led to positive outcomes, while approach goals encouraged earlier, open, and factual disclosure in romantic relationships, resulting in better positive outcomes. Greater HIV knowledge, approach goals, and trust encouraged protective behaviors and advocacy. HIV was normalized within the relationship, allowing the couple to manage it alongside everyday uncertainties.
希腊的艾滋病毒污名化程度很高。艾滋病毒污名化阻碍了检测、医疗保健的获取以及治疗依从性,常常导致患者不透露病情。透露病情者需要平衡知己可能的反应,应对各种挑战,这些反应从排斥和歧视到亲密感和好感增加带来的益处各不相同。然而,许多研究要么侧重于知己的反应,要么侧重于透露病情者的角色,在理解整个病情披露过程方面存在空白。
本定性案例研究探讨了艾滋病毒病情披露、污名化和信任建立的过程,重点关注透露艾滋病毒阳性状况的时间、原因及其对透露病情者和知己之间关系动态的影响。对一对血清反应不一致的男同性恋伴侣进行了半结构化访谈,他们是从希腊一家医院招募的。
通过解释性现象学分析,我们确定了一个上级主题:艾滋病毒病情披露过程,以及三个子主题:(1) 应对艾滋病毒病情披露:决策与披露事件;(2) 艾滋病毒接纳与污名化:披露途径;(3) 艾滋病毒病情披露:建立信任基础并应对生活中更广泛的不确定性。采用了研究者三角互证法,提高了研究结果的可信度和可靠性。
我们的案例研究将艾滋病毒病情披露视为一个统一的过程,揭示了回避目标和接近目标并存的情况。回避策略通过在冲突的家庭关系中抑制情感来延迟披露,但也带来了积极的结果;而接近目标则鼓励在浪漫关系中更早、更开放和真实地披露病情,从而产生更好的积极结果。更多的艾滋病毒知识、接近目标和信任鼓励了保护行为和宣传活动。艾滋病毒在关系中得以正常化,使这对伴侣能够在应对日常不确定性的同时应对艾滋病毒问题。