Interventions to improve quality of life and knowledge in Hypersensitivity Pneumonitis, a survey of clinician practices and perspectives.

BACKGROUND

Behavioral and educational interventions are promising approaches to improve health-related quality of life (HRQOL), however few have been studied in Hypersensitivity Pneumonitis (HP) or other interstitial lung diseases (ILD). The objective of this study was to gather ILD clinicians' current practices and perspectives on the management of HRQOL and disease-specific education in HP, knowledge and attitudes about behavioral and educational interventions, and identify potential clinician perceived barriers to address during intervention development.

METHODS

An electronic survey was administered to ILD clinicians across the United States. Survey data were analyzed using descriptive statistics and open-ended questions were analyzed using qualitative content analysis.

RESULTS

74 clinicians responded to the survey, of whom 93% identified as physicians. All respondents (100%) indicated that offering an intervention to improve HRQOL in their patients with HP is either very important, or absolutely essential. Only 5% of clinicians reported currently using a validated assessment tool to measure HRQOL. When asked about specific behavioral intervention techniques, most clinicians (92%) reported possessing a small amount, or zero knowledge about peer coaching interventions, and a small amount or zero knowledge (69%) about cognitive behavioral therapy (CBT) principles. Despite this, a majority (68%) of clinicians desire the ability to educate their patients about these potentially effective behavioral interventions, and a majority (67%) of clinicians indicated the desire to reinforce the principles of an intervention after completion. Perceived barriers to referring patients to a virtually delivered behavioral intervention included time constraints, availability and access for all patients, cost and reimbursement, and difficulty with technology.

CONCLUSION

Clinicians in this survey unanimously agree that interventions to improve HRQOL and knowledge are needed for people living with HP. Clinicians' desire for involvement in education, referral and reinforcement of these interventions will require clinician education in behavioral strategies and implementation-related strategies early in the development process.