McAuliffe Tomomi, Bermingham Briony, Bourke-Taylor Helen
School of Health and Rehabilitation Sciences, The University of Queensland, St Lucia, QLD, Australia.
School of Primary and Allied Health Care, Monash University, Peninsula Campus, Frankson, VIC, Australia.
Aust Occup Ther J. 2025 Feb;72(1):e13007. doi: 10.1111/1440-1630.13007.
Under the National Disability Insurance Scheme (NDIS), participants can self-manage their funding. This management style largely deviates from previous Australian service systems. The self-management option provides NDIS participants flexibility and choice in accessing any services; however, it generates an administrative burden. In 2019, parents of children with disability had the highest percentage of using the self-management option. Parents of children commonly have high child-care responsibilities and experience health issues. Given the administrative burden associated with the self-management option, the experiences of these parents should be documented.
This study aimed to explore the experiences of parents of children with disability as they fully or partly self-manage their children's NDIS funding.
Semi-structured individual interviews were conducted with 16 parents. The transcribed data were analysed, using reflexive thematic analysis.
No service user was involved in this study.
Four themes were generated: (1) Feeling empowered by having control and choice for my child's needs; (2) it is time-consuming, and overwhelming, but glad to have chosen this option; (3) need to be responsible because you run a business with public funding; and (4) professional background and disability networks help self-management.
The research provides insight into how parents navigate the complexity of NDIS as they self-manage to benefit their children. While self-management is overwhelming, it provides choice and control to parents, fostering parenting self-efficacy. The research highlights the importance of a support network, diverse skills, and knowledge to efficiently self-manage NDIS funding, which should be considered as occupational therapists support parents of children with disability.
在国家残疾保险计划（NDIS）下，参与者可以自行管理他们的资金。这种管理方式与澳大利亚以往的服务体系有很大不同。自我管理选项为NDIS参与者在获取任何服务方面提供了灵活性和选择权；然而，它也带来了行政负担。2019年，残疾儿童的父母使用自我管理选项的比例最高。儿童的父母通常承担着很高的育儿责任并经历健康问题。鉴于与自我管理选项相关的行政负担，这些父母的经历应该被记录下来。
本研究旨在探索残疾儿童的父母在完全或部分自行管理其子女的NDIS资金时的经历。
对16位父母进行了半结构化的个人访谈。使用反思性主题分析对转录的数据进行了分析。
本研究未涉及服务使用者。
产生了四个主题：（1）因能为孩子的需求掌控和选择而感到有力量；（2）这既耗时又让人应接不暇，但很高兴选择了这个选项；（3）因为用公共资金运营一项事务所以需要负责；（4）专业背景和残疾网络有助于自我管理。
该研究深入了解了父母在自行管理以使其子女受益时如何应对NDIS的复杂性。虽然自我管理让人应接不暇，但它为父母提供了选择和控制权，增强了育儿自我效能感。该研究强调了支持网络、多样的技能和知识对于有效自行管理NDIS资金的重要性，在职业治疗师支持残疾儿童的父母时应予以考虑。
