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本文引用的文献

1
A comprehensive nonoperative treatment protocol for developmental dysplasia of the hip in infants : a prospective longitudinal cohort study.婴儿发育性髋关节发育不良的综合非手术治疗方案：一项前瞻性纵向队列研究。
Bone Joint J. 2023 Aug 1;105-B(8):935-942. doi: 10.1302/0301-620X.105B8.BJJ-2023-0149.R1.
2
Splinting for the non-operative management of developmental dysplasia of the hip (DDH) in children under six months of age.婴幼儿发育性髋关节发育不良（DDH）非手术治疗中支具的应用。
Cochrane Database Syst Rev. 2022 Oct 10;10(10):CD012717. doi: 10.1002/14651858.CD012717.pub2.
3
Parental experiences of children with developmental dysplasia of the hip: a qualitative study.父母对患有发育性髋关节发育不良的儿童的体验：一项定性研究。
BMJ Open. 2022 Sep 23;12(9):e062585. doi: 10.1136/bmjopen-2022-062585.
4
Updated methodological guidance for the conduct of scoping reviews.范围综述实施的更新方法学指南。
JBI Evid Synth. 2020 Oct;18(10):2119-2126. doi: 10.11124/JBIES-20-00167.
5
Getting the right answer: core outcome sets in orthopaedics.找到正确答案：骨科核心结局集
Bone Joint J. 2019 Mar;101-B(3):233-235. doi: 10.1302/0301-620X.101B3.BJJ-2019-0065.
6
PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation.PRISMA 扩展用于范围审查 (PRISMA-ScR): 清单和解释。
Ann Intern Med. 2018 Oct 2;169(7):467-473. doi: 10.7326/M18-0850. Epub 2018 Sep 4.
7
The COMET Handbook: version 1.0.《COMET手册：第1.0版》
Trials. 2017 Jun 20;18(Suppl 3):280. doi: 10.1186/s13063-017-1978-4.
8
The Importance of Integration of Stakeholder Views in Core Outcome Set Development: Otitis Media with Effusion in Children with Cleft Palate.利益相关者观点整合在核心结局集制定中的重要性：腭裂患儿的中耳积液
PLoS One. 2015 Jun 26;10(6):e0129514. doi: 10.1371/journal.pone.0129514. eCollection 2015.
9
Developing core outcome sets for clinical trials: issues to consider.制定临床试验核心结局集：需要考虑的问题。
Trials. 2012 Aug 6;13:132. doi: 10.1186/1745-6215-13-132.
10
GRADE guidelines: a new series of articles in the Journal of Clinical Epidemiology.GRADE 指南：《临床流行病学杂志》的一系列新文章。
J Clin Epidemiol. 2011 Apr;64(4):380-2. doi: 10.1016/j.jclinepi.2010.09.011. Epub 2010 Dec 24.

针对使用支具治疗的发育性髋关节发育不良婴儿，制定以家庭为中心的核心结局指标集。

Development of a family-centred core outcome set for infants with developmental dysplasia of the hip treated with a brace.

作者信息

Craven Joanna, O'Malley Olivia, Perry Daniel C

机构信息

University of Liverpool, Liverpool, UK.

Wales Deanery, Cardiff, UK.

出版信息

Bone Jt Open. 2025 Jan 4;6(1):21-25. doi: 10.1302/2633-1462.61.BJO-2024-0186.

DOI:10.1302/2633-1462.61.BJO-2024-0186
PMID:39753147
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11698604/
Abstract

AIMS

This study aims to define a set of family-centred core outcomes for infants undergoing brace treatment to facilitate consistent reporting for future high-quality research.

METHODS

Family-centred outcomes will be identified through a literature review and a scoping survey involving key stakeholders, including parents, healthcare professionals, and researchers. These outcomes will then be rated for their perceived importance in a two-stage modified Delphi process with the same stakeholders. Finally, a consensus meeting will be held to establish the final core outcome set (COS).

CONCLUSION

The impact of brace treatment on the family is profound, but seldom considered in randomized controlled trials. This COS can independently standardize reporting on the family's experience, and potentially become part of a broader COS for developmental dysplasia of the hip in infants undergoing brace treatment.

摘要

目的

本研究旨在为接受支具治疗的婴儿确定一套以家庭为中心的核心结局，以促进未来高质量研究的一致报告。

方法

通过文献综述和涉及关键利益相关者（包括父母、医疗保健专业人员和研究人员）的范围界定调查来确定以家庭为中心的结局。然后，在与相同利益相关者进行的两阶段改良德尔菲过程中，对这些结局的感知重要性进行评分。最后，将召开一次共识会议以确定最终的核心结局集（COS）。

结论

支具治疗对家庭的影响是深远的，但在随机对照试验中很少被考虑。这个COS可以独立规范关于家庭体验的报告，并有可能成为接受支具治疗的婴儿髋关节发育不良更广泛COS的一部分。