Mambro Andrea, Mortazhejri Sameh, Ortiz-Paredes David, Patey Andrea, Fontaine Guillaume, Dussault Camille, Cox Joseph, Grimshaw Jeremy M, Presseau Justin, Kronfli Nadine
Centre for Outcomes Research and Evaluation, Research Institute of the McGill University Health Centre, Montreal, Canada.
Centre for Implementation Research, Methodological and Implementation Research, Ottawa Hospital Research Institute, Ottawa, Canada.
Viruses. 2024 Dec 12;16(12):1910. doi: 10.3390/v16121910.
Hepatitis C virus (HCV) disproportionately affects certain sub-populations, including people with experience of incarceration (PWEI). Little is known about how perceptions of HCV and treatment have changed despite simplifications in testing and treatment in carceral settings. Nineteen semi-structured interviews were conducted with people living with or having a history of HCV infection released from Quebec provincial prison. Interviews were guided by the Common Sense Self-Regulation Model (CS-SRM) and aimed to explore cognitive and emotional representations of HCV and coping strategies. Among the 19 participants, seven (37%) were diagnosed with HCV in prison and 14 (74%) had previously received HCV treatment. Participants' HCV illness perceptions were influenced by fear (of HCV transmission, death, and the well-being of family) and stigma (related to HCV, injection drug use, and incarceration). While some sought education and social and professional support, others self-isolated or engaged in high-risk behaviors to cope. Despite advances in HCV treatment, PWEI continue to experience various forms of stigma and fear surrounding their HCV diagnosis, resulting in delayed HCV care. These findings provide insights into how prison-based healthcare providers can better utilize HCV illness perceptions to evaluate willingness to engage in HCV care among PWEI.
丙型肝炎病毒（HCV）对某些亚人群的影响尤为严重，包括有监禁经历的人（PWEI）。尽管监狱环境中的检测和治疗已经简化，但对于人们对HCV和治疗的看法如何变化却知之甚少。对从魁北克省监狱释放的HCV感染者或有HCV感染史的人进行了19次半结构化访谈。访谈以常识自我调节模型（CS-SRM）为指导，旨在探索对HCV的认知和情感表征以及应对策略。在19名参与者中，7人（37%）在监狱中被诊断出感染HCV，14人（74%）此前接受过HCV治疗。参与者对HCV疾病的认知受到恐惧（对HCV传播、死亡和家人幸福的恐惧）和耻辱感（与HCV、注射吸毒和监禁有关）的影响。一些人寻求教育以及社会和专业支持，而另一些人则自我隔离或从事高风险行为来应对。尽管HCV治疗取得了进展，但PWEI在其HCV诊断方面仍继续经历各种形式的耻辱感和恐惧，导致HCV治疗延迟。这些发现为监狱医疗服务提供者如何更好地利用对HCV疾病的认知来评估PWEI参与HCV治疗的意愿提供了见解。
