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Consumer perspectives on the national electronic health record and barriers to its adoption in Germany: does health policy require a change in communication?

作者信息

Kröner Saskia, Schreiweis Björn, Strotbaum Veronika, Brandl Lea Christine, Pobiruchin Monika, Wiesner Martin

机构信息

Health Informatics Research Group, University AS Osnabrück, Osnabrück, Germany.

Institute for Medical Informatics and Statistics, University Hospital Schleswig-Holstein and Kiel University, Kiel, Germany.

出版信息

BMC Health Serv Res. 2025 Jan 7;25(1):33. doi: 10.1186/s12913-024-12175-6.


DOI:10.1186/s12913-024-12175-6
PMID:39773635
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11706193/
Abstract

BACKGROUND: The national health record (ePA) was introduced January 1, 2021 in Germany and is available to every person insured under statutory health insurance. This study investigated the acceptance and expectations of the national health record in Germany, focusing on consumer perspectives, expectations, barriers, information needs, and communication aspects. METHODS: An exploratory, observational, cross-sectional online survey was conducted one year after ePA introduction, followed by descriptive statistical analysis. RESULTS: The top three ePA use cases were medical document collection, simplified data exchange between medical institutions, and emergency medical information. Adoption barriers included lack of information and access, privacy concerns, and perceived lack of necessity. Participants that felt informed about the ePA, reported they received information primarily from health insurances, the media, and educational or professional sources, mainly through printed brochures, social media, or via emails. Most participants (86.5%) preferred being informed through conversations, particularly with health insurance providers (81.5%) and doctors (61.0%). Written information was highly desired (94.5%), preferably via email or information letters/flyers. However, more than half of the participants (55.6%) reported being uninformed about the ePA introduction. CONCLUSION: The study revealed a communication gap between providers and consumers, leading to a low acceptance rate of digital health technologies. Comparisons with other countries showed low adoption rates for opt-in systems. The authors suggest changing communication strategies, given users prefer direct information from doctors or health insurance companies. Adopting an opt-out system with professional social media and marketing campaigns could increase nationwide ePA adoption.

摘要
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e7a7/11706193/31c657d4df71/12913_2024_12175_Fig6_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e7a7/11706193/0fc2d69aabc0/12913_2024_12175_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e7a7/11706193/bbf24406f148/12913_2024_12175_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e7a7/11706193/b40e152eb765/12913_2024_12175_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e7a7/11706193/ec82de350574/12913_2024_12175_Fig4_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e7a7/11706193/f01eb29ee543/12913_2024_12175_Fig5_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e7a7/11706193/31c657d4df71/12913_2024_12175_Fig6_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e7a7/11706193/0fc2d69aabc0/12913_2024_12175_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e7a7/11706193/bbf24406f148/12913_2024_12175_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e7a7/11706193/b40e152eb765/12913_2024_12175_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e7a7/11706193/ec82de350574/12913_2024_12175_Fig4_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e7a7/11706193/f01eb29ee543/12913_2024_12175_Fig5_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e7a7/11706193/31c657d4df71/12913_2024_12175_Fig6_HTML.jpg

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引用本文的文献

[1]
Heterogeneity in willingness to share personal health information: a nationwide cluster analysis of 20,000 adults in Japan.

Arch Public Health. 2025-4-18

本文引用的文献

[1]
How do opt-in versus opt-out settings nudge patients toward electronic health record adoption? An exploratory study of facilitators and barriers in Austria and France.

BMC Health Serv Res. 2024-4-8

[2]
Tanzania's and Germany's Digital Health Strategies and Their Consistency With the World Health Organization's Global Strategy on Digital Health 2020-2025: Comparative Policy Analysis.

J Med Internet Res. 2024-3-18

[3]
Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden.

BMJ Paediatr Open. 2024-3-9

[4]
[Knowledge and attitudes towards sharing of health data: Results of a population survey].

Z Evid Fortbild Qual Gesundhwes. 2024-3

[5]
Perceived barriers and enablers of a personal health record from the healthcare provider perspective.

Health Informatics J. 2023

[6]
Patients Managing Their Medical Data in Personal Electronic Health Records: Scoping Review.

J Med Internet Res. 2022-12-27

[7]
Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review.

J Med Internet Res. 2022-12-22

[8]
Functionalities and Issues in the Implementation of Personal Health Records: Systematic Review.

J Med Internet Res. 2021-7-21

[9]
Barriers and Facilitators to the Implementation of eHealth Services: Systematic Literature Analysis.

J Med Internet Res. 2019-11-22

[10]
The Twitter Adventure of #MyHealthRecord: An Analysis of Different User Groups During the Opt-Out Period.

Stud Health Technol Inform. 2019-8-8

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