Farkic Marie, Globig Philipp, Alexiou Aikaterina, Worm Margitta
Division of Allergy and Immunology, Department of Dermatology, Venerology and Allergology, Charité - Universitätsmedizin Berlin, Berlin, Germany.
Allergol Select. 2024 Dec 31;8:425-433. doi: 10.5414/ALX02536E. eCollection 2024.
In allergology, clinical registries fill knowledge gaps of epidemiology, mechanisms of allergic diseases, and real-world treatment outcomes. Considering the continuous rise of allergic diseases worldwide, registries become increasingly important for the optimization and harmonization of patient care. In the current review, we present four ongoing allergy-focused registries initiated in Germany. We conducted a focused literature search and discussed their structure, main purposes, and findings. Registries included are the "Information Network of Departments of Dermatology", the "European Anaphylaxis Registry", the "GAN Severe Asthma Registry", and "TREATgermany". Despite differences in scope and operation, all registries gather harmonized real-world data that is indispensable for evidence-based decision making in clinical practice and ultimately improves patient care in allergology.
在过敏医学领域，临床登记系统填补了流行病学、过敏性疾病发病机制及真实世界治疗结果方面的知识空白。鉴于全球过敏性疾病持续增多，登记系统对于优化和统一患者护理变得愈发重要。在本综述中，我们介绍了德国启动的四个正在进行的以过敏为重点的登记系统。我们进行了针对性的文献检索，并讨论了它们的结构、主要目的和研究结果。纳入的登记系统包括“皮肤科部门信息网络”、“欧洲过敏反应登记系统”、“GAN重度哮喘登记系统”和“德国治疗登记系统”。尽管在范围和运作方面存在差异，但所有登记系统都收集了统一的真实世界数据，这些数据对于临床实践中基于证据的决策不可或缺，并最终改善了过敏医学领域的患者护理。
