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沙特阿拉伯王国成人姑息治疗团队对儿童提供姑息治疗服务的信心水平测量及差距识别

Measuring the Level of Confidence and Identifying Gaps in Providing Palliative Care Services to Children by the Adult Palliative Care Team in the Kingdom of Saudi Arabia.

作者信息

AlThaqafi Wesam, Alayed Sulaiman, Fraihat Luma, Sharha Ihab, Alsubayyil Mohammed, Alageel Yazeed

机构信息

Ministry of National Guard Health Affairs, Riyadh, Saudi Arabia.

King Abdullah International Medical Research Center, Ministry of National Guard Health Affairs Riyadh, Saudi Arabia.

出版信息

J Palliat Med. 2025 Apr;28(4):466-475. doi: 10.1089/jpm.2024.0122. Epub 2025 Jan 8.

DOI:10.1089/jpm.2024.0122
PMID:39778905
Abstract

The field of pediatric palliative care (PPC) has grown in the last few years because of increased awareness of the unique requirements of children at the terminal stage. In this study, we aimed to analyze the willingness and confidence of adult palliative care physicians in Saudi Arabia who provide palliative care services to children in need. This study employed a cross-sectional design to collect data from a large sample of palliative care physicians in Saudi Arabia. This study included palliative care physicians with a Saudi license who worked in Saudi Arabia and cared for patients with palliative needs. According to this study, palliative care physicians in Saudi Arabia felt unprepared to provide PPC while maintaining a good attitude toward the practice. Most palliative care physicians believed that their training was insufficient because they had little experience in this field. In addition, they are less comfortable managing pain and symptoms than interacting with families of palliative children. In Saudi Arabia, palliative care physicians are eager to offer PPC; however, they need requisite resources and training. In addition, we found that palliative care physicians and their patients would benefit from further support and assistance from a PPC team.

摘要

在过去几年中,由于对处于终末期儿童独特需求的认识不断提高,儿科姑息治疗(PPC)领域得到了发展。在本研究中,我们旨在分析沙特阿拉伯为有需要的儿童提供姑息治疗服务的成人姑息治疗医生的意愿和信心。本研究采用横断面设计,从沙特阿拉伯大量姑息治疗医生样本中收集数据。该研究纳入了持有沙特执照、在沙特阿拉伯工作并照顾有姑息治疗需求患者的姑息治疗医生。根据本研究,沙特阿拉伯的姑息治疗医生虽然对该业务保持良好态度,但觉得没有准备好提供儿科姑息治疗。大多数姑息治疗医生认为他们的培训不足,因为他们在该领域经验很少。此外,与姑息治疗儿童的家庭互动相比,他们在管理疼痛和症状方面不太得心应手。在沙特阿拉伯,姑息治疗医生渴望提供儿科姑息治疗;然而,他们需要必要的资源和培训。此外,我们发现姑息治疗医生及其患者将从儿科姑息治疗团队的进一步支持和协助中受益。

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