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国家癌症控制计划是否涵盖儿童、青少年及青年成人的护理与研究?对41个欧洲国家的现状、优先事项及建议的综述。

Do national cancer control plans address care and research for children, adolescents, and young adults? A review of status, priorities, and recommendations across 41 European countries.

作者信息

Prades Joan, Kozhaeva Olga, Otth Maria, Kearns Pamela, Ladenstein Ruth, Rizzari Carmelo, Heenen Delphine, Dirksen Uta, Owens Cormac, Lazarov Deyan, Sheehan Ciara, Borras Josep M, Vassal Gilles

机构信息

Catalan Cancer Plan, Department of Health, Av. Gran Via de l'Hospitalet, 199-203, 08908, L'Hospitalet de Llobregat, Barcelona, Spain.

Department of Clinical Sciences, IDIBELL, University of Barcelona, Av. Gran Via de l'Hospitalet, 199, 08908, L'Hospitalet de Llobregat, Barcelona, Spain.

出版信息

Lancet Reg Health Eur. 2024 Dec 18;49:101155. doi: 10.1016/j.lanepe.2024.101155. eCollection 2025 Feb.

Abstract

Paediatric cancers, although rare, are the leading cause of disease-related mortality in European children above one year. A key pillar of the European Health Union, Europe's Beating Cancer Plan (EBCP) puts a spotlight on childhood cancer. National Cancer Control Plans (NCCPs) have a key role but did not address childhood cancers sufficiently previously. This study considered the NCCPs of 41 European countries in relation to children and adolescents and young adults (AYAs). Twenty two NCCPs informed a structured narrative analysis. Four NCCPs were categorised as having comprehensive paediatric oncology content. Findings emphasise access to care through centralisation combined with local delivery of low-risk interventions and the role of multidisciplinary teams. Survivorship, AYA care, registries, and voluntary associations were addressed to varying degrees. Supportive care was among the weakest areas in the 22 NCCPs. Recommendations were presented to strengthen paediatric oncology in NCCPs and enrich the EBCP vision towards improved survival and reduced inequalities across Europe.

摘要

儿科癌症虽然罕见,但却是欧洲一岁以上儿童与疾病相关死亡的主要原因。作为欧洲卫生联盟的一个关键支柱,欧洲抗癌计划(EBCP)将重点放在了儿童癌症上。国家癌症控制计划(NCCPs)发挥着关键作用,但此前对儿童癌症的关注不够充分。本研究考察了41个欧洲国家针对儿童、青少年和青年(AYAs)的国家癌症控制计划。22项国家癌症控制计划为结构化叙述分析提供了信息。四项国家癌症控制计划被归类为具有全面的儿科肿瘤学内容。研究结果强调通过集中化结合低风险干预措施的本地化提供来获得医疗服务,以及多学科团队的作用。对生存、青少年和青年医疗、登记处及志愿协会的关注程度各不相同。在这22项国家癌症控制计划中,支持性护理是最薄弱的领域之一。提出了相关建议,以加强国家癌症控制计划中的儿科肿瘤学,并丰富欧洲抗癌计划的愿景,以提高全欧洲的生存率并减少不平等现象。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c5a3/11728967/0617d33b2237/gr1.jpg

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