Poirel Hélène A, Schittecatte Gabrielle, Van Aelst Fabienne
Sciensano, Cancer Centre, Sciensano, Brussels, Belgium.
Arch Public Health. 2024 Aug 27;82(Suppl 1):140. doi: 10.1186/s13690-024-01366-6.
Children and Adolescents and Young Adults with cancer represent a young population with specific needs, which need to be addressed in a patient- and cancer-driven way. There is an urgent need to support and extend the ongoing initiatives in Belgium. First, multidisciplinary care programmes dedicated to children need to be reviewed, and those for Adolescents and Young Adults need to be developed with close collaboration between paediatric and adult oncology and haematology teams. This needs to be done considering the entire patient journey; from cancer prevention, diagnosis, treatment, rehabilitation, follow-up of late effects, transition pathways between paediatric and adult wards, and palliative care. Second, national haemato/oncology precision programmes adapted to this young population with rare cancers, including infrastructure to manage cancer gene predisposition in CAYAs with cancers and their relatives, needs to be developed. This multi-level plan aims to ensure improved outcome with high quality of care for the young population with cancer in Belgium in line with Europe's Beating Cancer Plan initiatives.
患有癌症的儿童、青少年和青年是有特定需求的年轻群体，需要以患者和癌症为驱动的方式加以解决。迫切需要支持并扩展比利时正在开展的各项举措。首先，需要对专门针对儿童的多学科护理计划进行审查，并在儿科和成人肿瘤学及血液学团队密切协作的情况下制定针对青少年和青年的护理计划。这需要从癌症预防、诊断、治疗、康复、后期影响的随访、儿科和成人病房之间的过渡途径以及姑息治疗等患者的整个就医过程来考虑。其次，需要制定适合患有罕见癌症的年轻群体的国家血液学/肿瘤学精准计划，包括用于管理患有癌症的儿童、青少年和青年及其亲属的癌症基因易感性的基础设施。这项多层次计划旨在确保比利时患有癌症的年轻群体能获得高质量护理，从而改善治疗结果，这与欧洲的“战胜癌症计划”倡议相一致。
