Hobden Georgina, Tabone Faye, Demeyere Nele
Department of Experimental Psychology, University of Oxford, Oxford, UK
Nuffield Department of Clinical Neurosciences, University of Oxford, Oxford, UK.
BMJ Open. 2025 Jan 15;15(1):e084681. doi: 10.1136/bmjopen-2024-084681.
To search the literature systematically in order to map and identify gaps in research investigating patient and family member psychoeducation needs regarding post-stroke cognition.
Scoping review conducted in line with Joanna Briggs Institute (JBI) recommendations and PRISMA-ScR checklist.
MEDLINE, PsycINFO, Embase, CINAHL and Scopus were searched on 25 August 2023 for peer-reviewed studies conducted in a high-income country, describing cognition-related psychoeducation needs in stroke survivors and/or family members aged ≥18 years (≥50% of the study population). Two reviewers independently screened titles, abstracts and then full-text articles. One reviewer extracted pre-defined study characteristics and findings. These data were verified by a second reviewer. Synthesis involved descriptive statistics and thematic analysis.
Searches identified 8115 articles, of which 30 were included. Articles were published between 1996 and 2023. Studies were conducted in Australia (n=7), USA (n=6), UK (n=5), Canada (n=3), New Zealand (n=3), Ireland (n=2), Netherlands (n=2), South Korea (n=1) and Sweden (n=1). Most studies (n=21) used an exclusively qualitative approach but six combined qualitative and quantitative methods. The post-stroke period under investigation varied, including the acute/subacute stage (n=10) and the chronic stage (n=3), though many articles did not state the timepoint explicitly. Research was conducted with stroke survivors only (n=7), family members only (n=12) and both stroke survivors and family members (n=11). Qualitative analysis suggested participants wanted psychoeducation about cognitive impairment, including recovery expectations, treatment/therapy options and signposting to services/resources available. Hopeful information was important. Factors potentially impacting cognition-related psychoeducation needs were identified as time since stroke and family member relationship. Most articles focused on aphasia with very few studies considering other cognitive domains (eg, memory, attention, executive function).
The need for psychoeducation regarding cognition is well evidenced throughout the post-stroke care continuum, though most research has focused on language impairments. Further research investigating other cognitive impairments (eg, impairments in memory, attention and executive function) is required.
系统检索文献，以梳理和识别关于中风后认知方面患者及家属心理教育需求的研究空白。
按照乔安娜·布里格斯研究所（JBI）的建议和PRISMA-ScR清单进行范围综述。
于2023年8月25日在MEDLINE、PsycINFO、Embase、CINAHL和Scopus数据库中检索在高收入国家开展的同行评审研究，这些研究描述了年龄≥18岁的中风幸存者和/或家属（占研究人群的≥50%）与认知相关的心理教育需求。两名评审员独立筛选标题、摘要，然后是全文文章。一名评审员提取预先定义的研究特征和结果。这些数据由另一名评审员进行核实。综合分析包括描述性统计和主题分析。
检索到8115篇文章，其中30篇被纳入。文章发表于1996年至2023年之间。研究在澳大利亚（n = 7）、美国（n = 6）、英国（n = 5）、加拿大（n = 3）、新西兰（n = 3）、爱尔兰（n = 2）、荷兰（n = 2）、韩国（n = 1）和瑞典（n = 1）开展。大多数研究（n = 21）仅采用定性方法，但有六项研究结合了定性和定量方法。所研究的中风后时期各不相同，包括急性期/亚急性期（n = 10）和慢性期（n = 3），不过许多文章未明确说明时间点。研究对象仅为中风幸存者（n = 7）、仅为家属（n = 12）以及中风幸存者和家属两者（n = 11）。定性分析表明，参与者希望获得关于认知障碍的心理教育，包括恢复期望、治疗/疗法选择以及指向可用服务/资源的指引。积极的信息很重要。被确定为可能影响与认知相关心理教育需求的因素是中风后的时间以及家属关系。大多数文章聚焦于失语症，很少有研究考虑其他认知领域（如记忆、注意力、执行功能）。
在中风后护理的整个连续过程中，对认知方面心理教育的需求有充分证据，不过大多数研究集中在语言障碍方面。需要进一步研究其他认知障碍（如记忆、注意力和执行功能方面的障碍）。
