Frerichs Wiebke, Inhestern Laura, Johannsen Lene Marie, Bergelt Corinna
Department of Medical Psychology, University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.
Department of Medical Psychology, University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.
Patient Educ Couns. 2025 Apr;133:108666. doi: 10.1016/j.pec.2025.108666. Epub 2025 Jan 13.
To explore healthcare professionals' (HCPs) experiences when communicating about child- and family-related aspects in cancer care and their attitudes about the importance of including these aspects in cancer care.
We conduced semi-structured interviews with HCPs working in oncology. Interviews were audio-recorded, transcribed verbatim and analyzed using Kuckartz's method for qualitative content analysis.
N = 20 HCPs working in oncology, either inpatient or outpatient setting in the area of Hamburg, Germany participated. N = 7 were nurses, n = 6 psychologists, n = 5 physicians and n = 2 social workers. Results showed that HCPs' communication about child- and family-related aspects for cancer patients parenting minor children varies widely, influenced by factors such as diagnosis, structural challenges, individual characteristics, or profession. Additionally, their attitudes about how relevant it is to integrate child- and family-related aspects in routine cancer care varies from low relevance (i.e. lower priority, beyond professional role) to high relevance (i.e. palliative cases, children have a right to know).
HCPs' communication practice and views on the importance of addressing child- and family-related aspects in cancer care vary widely and are shaped by various influences.
Results emphasize the need for training and resources to enhance HCPs communication competencies to provide family-oriented care proactively.
探讨医疗保健专业人员(HCPs)在癌症护理中就儿童及家庭相关方面进行沟通时的经历,以及他们对在癌症护理中纳入这些方面重要性的态度。
我们对从事肿瘤学工作的HCPs进行了半结构化访谈。访谈进行了录音,逐字转录,并使用库卡茨的定性内容分析法进行分析。
德国汉堡地区20名从事肿瘤学工作的HCPs参与了研究,其中包括住院部或门诊部的工作人员。护士7名,心理学家6名,医生5名,社会工作者2名。结果显示,HCPs在与患有癌症且育有未成年子女的患者沟通儿童及家庭相关方面的情况时差异很大,受到诊断、结构挑战、个人特征或职业等因素的影响。此外,他们对于在常规癌症护理中纳入儿童及家庭相关方面的相关性的态度各不相同,从相关性低(即优先级较低,超出专业角色范围)到相关性高(即姑息治疗病例,儿童有权知晓)。
HCPs在癌症护理中就儿童及家庭相关方面的沟通实践和重要性的看法差异很大,且受到多种影响因素的塑造。
研究结果强调需要培训和资源,以提高HCPs的沟通能力,从而积极提供以家庭为导向的护理。