Sia Woon Teen, Tay Jia Chyi, Lee Tiong Chan, Nah Shireen Anne, A Nallusamy Mohan Arunasalam, Mahendran Hans Alexander
Monash Medical University, Clinical School Johor Bahru No. 8, Masjid Sultan Abu Bakar, 80100, Johor Bahru, Johor, Malaysia.
Department of Surgery, Sultanah Aminah Hospital, Jalan Persiaran Abu Bakar Sultan, 80100, Johor Bahru, Johor, Malaysia.
Pediatr Surg Int. 2025 Jan 28;41(1):76. doi: 10.1007/s00383-025-05969-0.
The advancements in neonatal resuscitation and surgical care have enabled children with congenital abnormalities to receive corrective surgeries and achieve lifespans well into adulthood. These patients may require long-term follow-up as they continue to have risks of developing sequelae from their original diseases or surgical interventions.
This study aimed to investigate the current practice and barriers to the transition of care (TOC) from the perspectives of adult surgeons.
A cross-sectional study was conducted with purposive sampling of adult surgeons from different subspecialties. An online self-administered questionnaire was distributed.
There were 60 respondents. 62% of the respondents had experience managing referrals for continuation of care or complications in patients with congenital abnormalities. 38% of the respondents believed that TOC should be implemented when patients reached ages 17-18 years. 93% of the respondents agreed that a proper TOC model would greatly benefit patient care, and 97% asserted the need to develop TOC pathways in Malaysia. The absence of a proper guideline was the greatest barrier to a smooth TOC.
This study offered insights into the obstacles to TOC based on the perspectives and experiences of adult surgeons who participated. While not exhaustive, our study provided a better understanding of the challenges in developing the appropriate referral pathways for the continued care of these patients.
新生儿复苏和外科护理的进步使患有先天性异常的儿童能够接受矫正手术并活到成年。这些患者可能需要长期随访，因为他们仍然有因原始疾病或手术干预而出现后遗症的风险。
本研究旨在从成人外科医生的角度调查当前护理过渡（TOC）的实践情况和障碍。
采用横断面研究，对来自不同亚专业的成人外科医生进行目的抽样。发放了一份在线自填式问卷。
共有60名受访者。62%的受访者有管理先天性异常患者转诊以继续护理或处理并发症的经验。38%的受访者认为应在患者17至18岁时实施TOC。93%的受访者同意适当的TOC模式将极大地有益于患者护理，97%的受访者主张在马来西亚制定TOC途径。缺乏适当的指南是顺利进行TOC的最大障碍。
本研究基于参与的成人外科医生的观点和经验，深入了解了TOC的障碍。虽然并不详尽，但我们的研究使人们更好地理解了为这些患者的持续护理制定适当转诊途径时所面临的挑战。
