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针对2型糖尿病青少年及青年患者及其照顾者的健康相关社会需求干预:一项采用以人为本设计的探索性研究

Health-Related Social Needs Intervention for Adolescents and Young Adults With Type 2 Diabetes and Their Caregivers: An Exploratory Study Using Human-Centered Design.

作者信息

Ragavan Maya I, Hewitt Brianna, Mickievicz Erin, Laubacher Callie, Harrison Caleb, Ray Kristin N, Carpenter Abigail, Williams Lynne, Geer Bobbi Watts, Garg Arvin, Vajravelu Mary Ellen

机构信息

Division of General Academic Pediatrics, University of Pittsburgh, Pittsburgh, PA, USA.

Division of Pediatric Endocrinology, Diabetes, and Metabolism, University of Pittsburgh, Pittsburgh, PA, USA.

出版信息

Community Health Equity Res Policy. 2025 Jan 29:2752535X251316990. doi: 10.1177/2752535X251316990.

Abstract

Youth-onset type 2 diabetes (T2D) is increasingly common and projected to impact over 200,000 adolescents and young adults by 2060. Youth with T2D frequently experience health-related social needs (HRSN) that increase their risk for poor outcomes. Using human-centered design methodology, we explored how best to address HRSN in pediatric endocrinology clinics. We conducted two parallel, six-session group meetings with youth ( = 4) and caregivers of youth ( = 6), as well as individual interviews with 12 pediatric endocrinology clinicians. An inductive thematic data analysis approach was used. Participants described that HRSN are pervasive for youth with T2D and are especially impactful after diagnosis. Participants thought that addressing HRSN in healthcare settings was important but emphasized that interventions need to be affirming and provide tangible, relevant resources. Engagement with community health workers trained around diabetes management is needed, as is structural change to disrupt health disparities. Future research and clinical transformation are discussed.

摘要

青少年发病的2型糖尿病(T2D)越来越普遍,预计到2060年将影响超过20万青少年和青年。患有T2D的青少年经常经历与健康相关的社会需求(HRSN),这增加了他们出现不良后果的风险。我们采用以人为本的设计方法,探讨了在儿科内分泌诊所中如何最好地满足HRSN。我们与青少年(n = 4)及其照顾者(n = 6)进行了两次平行的、为期六节的小组会议,并对12名儿科内分泌科临床医生进行了个人访谈。采用归纳主题数据分析方法。参与者表示,HRSN在患有T2D的青少年中普遍存在,并且在诊断后影响尤其显著。参与者认为在医疗环境中解决HRSN很重要,但强调干预措施需要得到肯定,并提供切实、相关的资源。需要与接受过糖尿病管理培训的社区卫生工作者合作,同时也需要进行结构性变革以消除健康差距。文中还讨论了未来的研究和临床转型。

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