Mackay Lyndsay, Dewan Tammie, Asaad Lauren, Buchanan Francine, Hayden K Alix, Montgomery Lara, Chang Una
School of Nursing, Trinity Western University, Langley, BC, Canada.
Department of Pediatrics, University of Calgary, Calgary, AB, Canada.
J Child Health Care. 2025 Jan 29:13674935241312299. doi: 10.1177/13674935241312299.
Children with medical complexity (CMC) are regularly admitted to inpatient care units to receive medical care. While admissions for CMC and their parents can negatively impact their health and well-being, mapping of evidence in this area appears underreported. A scoping review using the Joanna Briggs Institute methodology was conducted to map evidence on CMC and parents' experiences of care. The purpose of this paper is to report the findings from the scoping review specific to CMC and parents' experiences of care on their health and well-being. A total of 24 articles were synthesized, and themes included: psychological impacts for parents, impacts on functions of daily living, parents' coping strategies for psychological well-being, impacts of hospitalization on CMC, CMC coping strategies, spirituality, and interventional studies. Findings from this review demonstrate that CMC and their parents struggled with their psychological and emotional well-being and that both CMC and parents coped with the stress of hospitalization in a variety of ways. Healthcare professionals need to be educated on how to support CMC and their parents during hospitalization. Future development and implementation of innovative care models and interventions that offer CMC and their parents with enhanced psychosocial support are recommended.
患有复杂疾病的儿童（CMC）经常被收治到住院护理单元接受治疗。虽然CMC及其父母的住院治疗可能会对他们的健康和幸福产生负面影响，但该领域的证据梳理似乎报道不足。我们采用乔安娜·布里格斯研究所的方法进行了一项范围综述，以梳理关于CMC及其父母护理体验的证据。本文旨在报告范围综述中关于CMC及其父母护理体验对其健康和幸福影响的具体结果。共综合了24篇文章，主题包括：对父母的心理影响、对日常生活功能的影响、父母促进心理健康的应对策略、住院对CMC的影响、CMC的应对策略、精神层面、以及干预研究。本次综述结果表明，CMC及其父母在心理和情绪健康方面面临困难，并且CMC和父母都以多种方式应对住院压力。医疗保健专业人员需要接受培训，了解如何在住院期间支持CMC及其父母。建议未来开发和实施创新护理模式及干预措施，为CMC及其父母提供更多的心理社会支持。
