Darawad Muhammad W, Reinke Lynn F, Khalil Amani, Melhem Ghaith Bani, Alnajar Malek
J Hosp Palliat Nurs. 2025 Jun 1;27(3):E107-E117. doi: 10.1097/NJH.0000000000001104. Epub 2025 Jan 30.
Patients with end-stage renal disease face numerous physical, emotional, and financial burdens, necessitating palliative care (PC) interventions. This cross-sectional study assessed the problems and unmet needs of 129 patients under renal dialysis from 6 hospitals. Findings revealed that 64.7% of participants experienced significant challenges, primarily financial difficulties (78.5%), autonomy concerns (68.8%), and a need for information (68.0%). More than half (51.9%) reported needing PC, particularly for managing fatigue (78.3%), pain (79.8%), and depression (72.9%). Unmet needs were common (47.6%), with the most notable gaps in financial support (52.5%) and information provision (50%). Correlation analysis demonstrated strong positive associations between reported problems, care needs, and unmet needs ( r > 0.90, P < .001). Significant differences were observed by dialysis access type ( F = 5.71, P = .001), with arteriovenous fistula patients reporting higher problems and unmet needs. Increased dialysis frequency was linked to more problems and unmet needs ( F = 7.24, P < .001). In addition, patients with comorbidities experienced significantly higher problems, care needs, and unmet needs (all P s < .001). These findings underscored the urgent need for tailored PC interventions for end-stage renal disease patients, particularly in addressing symptom management, psychosocial and spiritual support, financial support, and information deficits, to enhance their quality of life.
终末期肾病患者面临着众多身体、情感和经济负担,因此需要姑息治疗(PC)干预。这项横断面研究评估了来自6家医院的129名接受肾透析患者的问题和未满足的需求。研究结果显示,64.7%的参与者经历了重大挑战,主要是经济困难(78.5%)、自主权问题(68.8%)和信息需求(68.0%)。超过一半(51.9%)的人报告需要姑息治疗,尤其是在应对疲劳(78.3%)、疼痛(79.8%)和抑郁(72.9%)方面。未满足的需求很常见(47.6%),在经济支持(52.5%)和信息提供(50%)方面差距最为明显。相关性分析表明,报告的问题、护理需求和未满足的需求之间存在强烈的正相关(r>0.90,P<.001)。根据透析通路类型观察到显著差异(F=5.71,P=.001),动静脉内瘘患者报告的问题和未满足的需求更高。透析频率增加与更多问题和未满足的需求相关(F=7.24,P<.001)。此外,患有合并症的患者经历的问题、护理需求和未满足的需求显著更高(所有P值<.001)。这些发现强调了迫切需要为终末期肾病患者量身定制姑息治疗干预措施,特别是在解决症状管理、心理社会和精神支持、经济支持以及信息不足方面,以提高他们的生活质量。