Nascimento Amanda Aparecida Alves Cunha, Souto Deisiane Oliveira, Cruz Thalita Karla Flores, de Lima Arthur Felipe Barroso, Oliveira Gabriela Silva, Haase Vitor Geraldi
Institute of Neurodevelopment, Cognition, and Inclusive Education (INCEI), Ribeirão das Neves, Belo Horizonte, MG, Brazil.
Postgraduate Program in Neuroscience, Federal University of Minas Gerais, Belo Horizonte, MG, Brazil.
BMC Pediatr. 2025 Jan 30;25(1):75. doi: 10.1186/s12887-025-05422-0.
Understanding the priorities of parents of children and adolescents with autism spectrum disorder (ASD) is crucial for implementing evidence-based programs. This study aims to identify the functional priorities of parents of Brazilian children and adolescents with ASD, analyze variations in priorities according to the levels of support and age groups of the participants, and categorize the goals according to the categories of the International Classification of Functioning, Disability, and Health (ICF). Additionally, this study aimed to evaluate changes in parents' performance and satisfaction with functional priorities after intervention with the Global Integration Method (Métodode Integração Global - MIG).
A total of 241 children/adolescents with ASD (mean age, 6.92 ± 3.61 years) were recruited from different regions of Brazil. 76% (76%) were male, and 40.7% were classified as having support level 2. The Canadian Occupational Performance Measure was administered to parents/caregivers to identify their priorities for their children and to assess changes in performance and satisfaction with priorities after intervention with MIG. The MIG protocol consisted of functional task training in a naturalistic environment (City of Tomorrow) combined with the use of a flexible therapeutic suit (MIG Flex) and was conducted for 3 months, five times a week, for 3-4 h per day. Descriptive statistics were used to provide the priority profile. Pre- and post-intervention data were analyzed using paired t-test.
Parents established 1,203 functional priorities. Activities of daily living, behavioral difficulties, communication, play, and social interactions were the main functional priorities in the perception of parents/caregivers. The profiles of functional priorities were similar between the different levels of support and age groups. Approximately 64% of the priorities were classified in the activity domain of the ICF. In general, the MIG program resulted in significant improvements in performance and satisfaction for the majority of functional priorities (p < 0.05).
Activities of daily living appear to be the main priority of parents of children and adolescents with ASD, regardless of the level of support or age group. The MIG program has been associated with improvements in performance and satisfaction across several of the functional priorities identified by parents.
了解自闭症谱系障碍（ASD）儿童及青少年家长的优先事项对于实施循证项目至关重要。本研究旨在确定巴西ASD儿童及青少年家长的功能优先事项，根据参与者的支持水平和年龄组分析优先事项的差异，并根据《国际功能、残疾和健康分类》（ICF）的类别对目标进行分类。此外，本研究旨在评估采用全球整合方法（Métodode Integração Global - MIG）干预后家长在功能优先事项方面的表现变化和满意度。
从巴西不同地区招募了总共241名ASD儿童/青少年（平均年龄6.92±3.61岁）。76%为男性，40.7%被归类为支持水平2。对家长/照顾者进行了加拿大职业表现测量，以确定他们对孩子的优先事项，并评估MIG干预后在优先事项方面的表现变化和满意度。MIG方案包括在自然环境（明日之城）中进行功能任务训练，结合使用灵活的治疗套装（MIG Flex），为期3个月，每周5次，每天3 - 4小时。使用描述性统计来提供优先事项概况。干预前后的数据采用配对t检验进行分析。
家长确定了1203项功能优先事项。在家长/照顾者的认知中，日常生活活动、行为困难、沟通、玩耍和社交互动是主要的功能优先事项。不同支持水平和年龄组之间的功能优先事项概况相似。约64%的优先事项被归类在ICF的活动领域。总体而言，MIG项目使大多数功能优先事项的表现和满意度有显著改善（p < 0.05）。
无论支持水平或年龄组如何，日常生活活动似乎都是ASD儿童及青少年家长的主要优先事项。MIG项目与家长确定的多个功能优先事项的表现和满意度提高相关。
