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用于儿科和成人囊性纤维化患者远程康复的工具和设备:一项范围综述

Tools and devices for telerehabilitation in pediatric and adult cystic fibrosis patients: a scoping review.

作者信息

De Marchis Matteo, Cioeta Matteo, Bella Sergio, Cutrera Renato, Cannataro Mario

机构信息

Pneumology and Cystic Fibrosis Unit, Bambino Gesù Children's Hospital IRCCS, Rome, Italy.

University of Magna Graecia of Catanzaro, Calabria, Italy.

出版信息

Disabil Rehabil Assist Technol. 2025 Feb 10:1-8. doi: 10.1080/17483107.2025.2463548.


DOI:10.1080/17483107.2025.2463548
PMID:39928374
Abstract

BACKGROUND: Cystic fibrosis (CF) is a genetic disorder affecting multiple organs, primarily the lungs. Rehabilitation is crucial in managing respiratory symptoms. Telerehabilitation, which provides remote rehabilitation services digital platforms, gained importance during the COVID-19 pandemic. Despite its growing use, there is little clarity on the available tools and devices for CF telerehabilitation. OBJECTIVE: This scoping review aims to map the existing tools and devices used in telerehabilitation for pediatric and adult CF patients. METHODS: The review was conducted following the Joanna Briggs Institute methodology, using the PRISMA-ScR checklist. Comprehensive searches were performed across seven databases, alongside grey literature. Studies involving CF patients and telerehabilitation interventions were included. Data were extracted and analyzed both numerically and thematically. RESULTS: Eighteen studies were included, involving 622 CF patients. The review identified 10 platforms, seven telemonitoring devices, and three rehabilitation devices. Most studies focused on motor rehabilitation with individual, synchronous sessions. Commonly used platforms included Zoom, Skype, and Google Meet, while only three studies used platforms specifically designed for CF. CONCLUSIONS: Telerehabilitation for CF is in its early stages and less developed than for other conditions. There is a need for dedicated platforms and devices that address CF patients' specific motor and respiratory needs. Future efforts should focus on developing these tools to improve patient engagement and outcomes.

摘要

背景:囊性纤维化(CF)是一种影响多个器官的遗传性疾病,主要影响肺部。康复治疗对于控制呼吸道症状至关重要。远程康复通过数字平台提供远程康复服务,在新冠疫情期间变得愈发重要。尽管其使用越来越广泛,但对于CF远程康复可用的工具和设备仍知之甚少。 目的:本范围综述旨在梳理用于儿童和成人CF患者远程康复的现有工具和设备。 方法:本综述按照乔安娜·布里格斯研究所的方法进行,使用PRISMA-ScR清单。在七个数据库以及灰色文献中进行了全面检索。纳入了涉及CF患者和远程康复干预的研究。对数据进行了数值和主题分析。 结果:纳入了18项研究,涉及622名CF患者。该综述确定了10个平台、7种远程监测设备和3种康复设备。大多数研究聚焦于个体同步进行的运动康复。常用平台包括Zoom、Skype和谷歌Meet,而只有三项研究使用了专门为CF设计的平台。 结论:CF远程康复尚处于早期阶段,且不如其他疾病的远程康复发达。需要有专门针对CF患者特定运动和呼吸需求的平台和设备。未来的工作应集中在开发这些工具以提高患者参与度和改善治疗效果。

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