Simsek Aysegul
Department of Pediatric Nursing, Faculty of Health Sciences, Marmara University, BaşibuyukMaltepe, Istanbul, Turkey.
J Cancer Educ. 2025 Feb 18. doi: 10.1007/s13187-025-02581-7.
This study examines whether encountering cancer makes a difference and the perspectives and attitudes of parents of children with cancer. This descriptive and cross-sectional study was conducted with parents who applied to the emergency department of a hospital. Data were collected using a sociodemographic information form and the "Cancer Attitudes Questionnaire (Cancer Stigma)-Community Version." Mean, minimum, maximum, number, and percentages and comparison analyses (chi-square, Mann-Whitney U, and Kruskal-Wallis tests) were performed. The significance level was a 95% confidence interval. The study was completed with a total of 362 parents, 120 of whom had children with cancer. Of the parents, 82.9% are mothers. The scale score of those who had a child with cancer was 3.34 and 3.22 for those who did not have a child with cancer. The scale score was affected by the number of children (p=0.008), mother's occupation (p=0.00), parents' educational status (mother p=0.05; father p=0.03), family type (p=0.00), family economic status (p=0.02), religious perception (p=0.01), child's age (p=0.001), gender (p=0.00), type of treatment (p=0.00), and previous hospital experience (p=0.006). The findings revealed that parents' attitudes towards cancer were negative regardless of whether they experienced cancer or not. Personal characteristics such as family type, parental occupation, and educational status, as well as disease-related characteristics such as the type of the child's disease (acute or chronic) and the type of treatment, affect the direction of attitudes. It is recommended that stigmatization be included in individual and community education on health. Especially for patients, the feelings and effects of stigmatization can be included. It is also recommended to include an empathic approach in education.
本研究探讨了遭遇癌症是否会产生影响,以及癌症患儿家长的观点和态度。这项描述性横断面研究是对申请到一家医院急诊科就诊的家长开展的。通过社会人口统计学信息表和“癌症态度问卷(癌症耻辱感)-社区版”收集数据。进行了均值、最小值、最大值、数量、百分比及比较分析(卡方检验、曼-惠特尼U检验和克鲁斯卡尔-沃利斯检验)。显著性水平为95%置信区间。该研究共纳入362名家长,其中120名家长的孩子患有癌症。在这些家长中,82.9%为母亲。有孩子患癌症的家长的量表得分是3.34,没有孩子患癌症的家长的量表得分是3.22。量表得分受孩子数量(p=0.008)、母亲职业(p=0.00)、父母教育程度(母亲p=0.05;父亲p=0.03)、家庭类型(p=0.00)、家庭经济状况(p=0.02)、宗教观念(p=0.01)、孩子年龄(p=0.001)、性别(p=0.00)、治疗类型(p=0.00)以及既往住院经历(p=0.006)的影响。研究结果显示,无论是否经历过癌症,家长对癌症的态度都是负面的。家庭类型、父母职业和教育程度等个人特征,以及孩子疾病类型(急性或慢性)和治疗类型等与疾病相关的特征,都会影响态度的倾向。建议将耻辱感纳入个人和社区健康教育。特别是对于患者,可以纳入耻辱感的感受和影响。还建议在教育中采用共情方法。