Beyond the Frame: A Photo-Elicitation Study of Sibling Experiences on the Stay of Their Sibling With a Moderate to Profound Intellectual Disability in Group Homes.

BACKGROUND

Parents' decisions to use out-of-home support for children with intellectual disabilities significantly impact all family members, including siblings. However, siblings' perspectives on this transition to group homes remain underexplored. This study examines siblings' emotional experiences and changes in their personal and family lives due to their brother or sister's move to a group home.

METHODS

Using photo-elicitation and in-depth interviews, we engaged eight children (aged 7-17) with siblings in group homes. Participants captured changes or consistencies in daily life through photographs, which served as conversation triggers.

RESULTS

Participants highlighted objects and spaces reminding them of their sibling and documented missed or regained activities and interactions. Five themes emerged, reflecting their emotional experiences and perspectives.

CONCLUSIONS AND IMPLICATIONS

Siblings provided a nuanced view of their sibling's stay, noting benefits and feelings of incompleteness. Professionals should consider siblings' emotions and beliefs in caregiving decisions, recognising the significant impact on their lives.