Aars Nils Abel, Brandseth Oda, Bardal Ingvild, Stevelink Sharon, Sanatkar Samineh, Trichet Laurent Olivier, Samuelsen Kjetil Magne, Wilhelmsen Maja, Bjørneboe John, Anke Audny Gabriele Wagner, Roe Cecille, Brox Jens Ivar, Brinchmann Beate, Mykletun Arnstein
Centre for Work and Mental Health, Nordlandssykehuset HF, Bodo, Norway
Centre for Work and Mental Health, Nordlandssykehuset HF, Bodo, Norway.
BMJ Open. 2025 Mar 12;15(3):e096992. doi: 10.1136/bmjopen-2024-096992.
The Norwegian Neck and Back Registry (Norsk Nakke og Rygg Register, NNRR) was established to improve the quality of diagnosis and treatment in patients with neck and back complaints at Departments of Physical Medicine and Rehabilitation (PMR) in Norwegian hospitals. The purpose of this cohort profile is to describe the data from registered patients from 2016 to 2022 and linkage opportunities.
The registry includes adult patients with neck and back complaints referred to PMR multidisciplinary neck and back outpatient clinics in Norwegian hospitals. As of 2022, more than 8000 men and more than 10 000 women are included in the registry. Patients are predominantly diagnosed with non-specific neck or back conditions. The registry includes baseline and follow-up questionnaires from patients and their clinicians, collecting a broad range of self-reported data including demographic characteristics, employment, benefits, symptoms, diagnosis, treatment and treatment history, as well as quality of life. Participation is voluntary, and all patients in the registry have consented for the collected data to be linked with other national registries, presenting opportunities for large-scale registry-based scientific studies. Recruitment of patients to the registry is ongoing, and since 2016, an increasing number of patients have been included per year, with over 5000 in 2021 and 2022.
Data from the NNRR have been used to improve our understanding of what characterises neck and back patients in specialist healthcare compared with patients in primary healthcare, how neck and back symptoms differ according to ethnicity and language, how nationality influences outcome trajectories for neck and back patients, and for studying properties of measurement instruments.
Future plans involve expanding the registry to include patients from the remaining three neck and back outpatient clinics in order to obtain a complete national register in Norway, and to facilitate increased use of the data for quality improvement and research purposes. The registry welcomes collaboration with other researchers.
挪威颈部和背部登记处（挪威语：Norsk Nakke og Rygg Register，简称NNRR）的设立旨在提高挪威医院物理医学与康复科（PMR）中颈部和背部疾病患者的诊断和治疗质量。本队列概况的目的是描述2016年至2022年登记患者的数据以及数据关联机会。
该登记处纳入了被转诊至挪威医院PMR多学科颈部和背部门诊的有颈部和背部疾病的成年患者。截至2022年，登记处纳入了8000多名男性和10000多名女性。患者主要被诊断为非特异性颈部或背部疾病。该登记处包括患者及其临床医生填写的基线和随访问卷，收集了广泛的自我报告数据，包括人口统计学特征、就业情况、福利、症状、诊断、治疗及治疗史，以及生活质量。参与是自愿的，登记处的所有患者均已同意将收集到的数据与其他国家登记处进行关联，这为基于登记处的大规模科学研究提供了机会。患者招募工作正在进行中，自2016年以来，每年纳入的患者数量不断增加，2021年和2022年超过5000例。
NNRR的数据已被用于增进我们对以下方面的理解：与初级医疗保健中的患者相比，专科医疗保健中颈部和背部疾病患者的特征；颈部和背部症状如何因种族和语言而异；国籍如何影响颈部和背部疾病患者的预后轨迹；以及研究测量工具的特性。
未来计划包括将登记处扩大至纳入其余三家颈部和背部门诊的患者，以便在挪威获得完整的全国登记册，并促进更多地利用这些数据以改进质量和用于研究目的。该登记处欢迎与其他研究人员合作。
