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Dev Med Child Neurol. 2024 Jan;66(1):32-40. doi: 10.1111/dmcn.15640. Epub 2023 May 14.
2
Parental habitus in promoting self-determination of children with/without intellectual and developmental disabilities in Türkiye.土耳其父母在促进有/无智力和发育障碍儿童的自主性方面的习惯模式。
Res Dev Disabil. 2022 Dec;131:104347. doi: 10.1016/j.ridd.2022.104347. Epub 2022 Oct 8.
3
Functional and environmental predictors of health-related quality of life of school-age children with cerebral palsy: A cross-sectional study of caregiver perspectives.脑瘫学龄儿童健康相关生活质量的功能和环境预测因素:一项基于照顾者观点的横断面研究
Child Care Health Dev. 2023 Jan;49(1):62-72. doi: 10.1111/cch.13007. Epub 2022 Mar 28.
4
Epidemiology of cerebral palsy in low- and middle-income countries: preliminary findings from an international multi-centre cerebral palsy register.低收入和中等收入国家脑瘫的流行病学:一项国际多中心脑瘫登记的初步结果
Dev Med Child Neurol. 2021 Nov;63(11):1327-1336. doi: 10.1111/dmcn.14926. Epub 2021 May 24.
5
The orthopaedic aspect of spastic cerebral palsy.痉挛性脑瘫的骨科问题
J Orthop. 2020 Nov 4;22:553-558. doi: 10.1016/j.jor.2020.11.002. eCollection 2020 Nov-Dec.
6
State of the Evidence Traffic Lights 2019: Systematic Review of Interventions for Preventing and Treating Children with Cerebral Palsy.证据现状交通灯 2019:预防和治疗脑瘫儿童干预措施的系统评价。
Curr Neurol Neurosci Rep. 2020 Feb 21;20(2):3. doi: 10.1007/s11910-020-1022-z.
7
Factors associated with quality of life among mothers of children with cerebral palsy.脑瘫患儿母亲生活质量的相关因素。
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Behavioral difficulties, sleep problems, and nighttime pain in children with cerebral palsy.脑瘫儿童的行为困难、睡眠问题和夜间疼痛。
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9
Correlation Coefficients: Appropriate Use and Interpretation.相关系数:合理使用与解释。
Anesth Analg. 2018 May;126(5):1763-1768. doi: 10.1213/ANE.0000000000002864.
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Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability.参与,既是手段也是目的:对儿童残疾过程与结果的概念分析
Dev Med Child Neurol. 2017 Jan;59(1):16-25. doi: 10.1111/dmcn.13237. Epub 2016 Sep 19.

非卧床型痉挛性脑瘫患儿粗大运动功能的决定因素:土耳其的一项横断面研究

Determinants of Gross Motor Function in Children With Ambulatory Spastic Cerebral Palsy: A Cross-Sectional Study in Turkey.

作者信息

Turhan Atahan, Kurt-Aydin Merve, Tarsuslu Tülay

机构信息

Department of Physical Therapy and Rehabilitation, Kırşehir Ahi Evran University, Kırşehir, Turkey.

Department of Physical Therapy and Rehabilitation, Faculty of Health Sciences, İzmir Kâtip Çelebi University, Türkiye.

出版信息

J Paediatr Child Health. 2025 May;61(5):795-801. doi: 10.1111/jpc.70034. Epub 2025 Mar 18.

DOI:10.1111/jpc.70034
PMID:40099358
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12053074/
Abstract

AIM

This study aims to explore the determinants of gross motor function in ambulatory children with spastic cerebral palsy (CP).

METHODS

Sixty-eight children diagnosed with spastic CP type were included in the study. Sociodemographic and clinical information of children with CP and their families was recorded. Children's gross motor function level was classified using the Gross Motor Function Classification System; gross motor function was assessed using the Gross Motor Function Measure-66 (GMFM-66); and parental quality of life was assessed using the Paediatric Quality of Life Scale Family Effects Module (PedsQL-FIM).

RESULTS

No significant differences were observed in gross motor function or parental quality of life between hemiparetic and diparetic CP groups. However, children residing in urban areas showed significantly higher gross motor function and parental quality of life compared to those in rural areas (p < 0.05). Moderate correlations were found between gross motor function and physical functioning as well as place of residence (p < 0.05). Multiple regression indicated that physical functioning and urban residence were significant predictors of gross motor function, accounting for 37.9% of the variance in the GMFM-66 score.

CONCLUSION

This study shows that the quality of life of parents of children and residence in the urban area are independent predictors of gross motor function in children with CP. These findings highlight the importance of considering family well-being and environmental factors when developing interventions to improve gross motor function outcomes in children with CP.

TRIAL REGISTRATION

NCT06439446.

摘要

目的

本研究旨在探讨痉挛型脑性瘫痪(CP)能独立行走儿童的粗大运动功能的决定因素。

方法

68名被诊断为痉挛型CP的儿童纳入本研究。记录CP患儿及其家庭的社会人口统计学和临床信息。使用粗大运动功能分类系统对儿童的粗大运动功能水平进行分类;使用粗大运动功能测量量表-66(GMFM-66)评估粗大运动功能;使用儿童生活质量量表家庭影响模块(PedsQL-FIM)评估父母的生活质量。

结果

偏瘫型和双瘫型CP组在粗大运动功能或父母生活质量方面未观察到显著差异。然而,与农村地区的儿童相比,城市地区的儿童粗大运动功能和父母生活质量显著更高(p<0.05)。发现粗大运动功能与身体功能以及居住地点之间存在中度相关性(p<0.05)。多元回归表明,身体功能和城市居住是粗大运动功能的重要预测因素,占GMFM-66评分方差的37.9%。

结论

本研究表明,儿童父母的生活质量和城市居住情况是CP患儿粗大运动功能的独立预测因素。这些发现突出了在制定干预措施以改善CP患儿粗大运动功能结果时考虑家庭幸福感和环境因素的重要性。

试验注册

NCT06439446。