Nursing interventions for improving quality of life among parents with major Thalassemic children: a scoping review.

INTRODUCTION

Thalassemia major is a chronic genetic disease requiring long-term treatment, significantly impacting the quality of life of affected children and their parents. Parents often experience emotional, social, and economic burdens in caring for children with thalassemia. Nursing interventions play a crucial role in improving their quality of life by providing holistic support. This scoping review aims to explore nursing interventions that enhance the quality of life of parents with children diagnosed with thalassemia major.

METHODS

A scoping review methodology was applied. Literature searches were conducted in CINAHL, PubMed, and Scopus, as well as Google Scholar. The primary keywords included "nursing intervention," "quality of life," "thalassemia," "parents," and "family support." Inclusion criteria comprised full-text, original research articles published in English from 2015 to 2024. Data extraction was performed manually, and qualitative descriptive analysis was used.

RESULTS

Nine studies met the inclusion criteria, discussing various nursing interventions to improve parental quality of life. Effective interventions included positive thinking therapy, family empowerment, counseling, and education, which enhanced parental knowledge, coping skills, emotional well-being, and overall quality of life. Key factors supporting intervention success included active parental participation, continuous healthcare support, and the availability of accessible educational resources.

CONCLUSION

This study highlights the essential role of nurses in supporting parents of children with thalassemia. A holistic nursing approach is crucial in addressing the multifaceted needs of these parents. Further research should explore the long-term effectiveness of these interventions and their adaptation to individual family circumstances.