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从瘙痒到就医:心理皮肤病护理的挑战与远程医疗的前景

From Itch to Access: Psychodermatological Care Challenges and the Promise of Telehealth.

作者信息

Rümmelein Julia, Brockes Christiane, Greis Christian

机构信息

Clienia Schlössli AG Private Hospital for Psychiatry and Psychotherapy, 8618 Oetwil am See, Switzerland.

Clinical Telemedicine, University Hospital Zurich, 8091 Zurich, Switzerland.

出版信息

J Clin Med. 2025 Mar 15;14(6):1993. doi: 10.3390/jcm14061993.

Abstract

Pruritus is a prominent symptom of chronic inflammatory skin diseases and significantly affects quality of life. Psychological stress can exacerbate pruritus and worsen skin conditions, yet psychological aspects are often insufficiently addressed in clinical routine. While psychodermatological treatments are becoming more available in German-speaking countries, they are mostly confined to specialized clinics, limiting access for many patients. This study aims to explore the unmet needs of patients with chronic inflammatory skin diseases in German-speaking regions and assess the potential role of telemedicine in bridging existing psychodermatological care gaps. Patients with chronic inflammatory skin diseases were invited via the Network of People with Autoimmune Diseases to participate in free video consultations with a licensed psychotherapist. Quantitative data on disease, pruritus, and distress were analyzed alongside qualitative feedback from consultations and surveys. Of 174 individuals who received the newsletter, 124 opened it, and 16 engaged with the scheduling link. Over one month, five patients (mean age 40.4 years, all female) participated in psychodermatological video consultations. All had chronic inflammatory skin diseases and were under dermatological care but felt insufficiently treated by dermatological approaches alone. Barriers to multimodal care included lack of awareness, distance to specialized clinics, and long waiting times. Three participants reported pruritus with an average intensity of 75/100 on a Visual Analog Scale (VAS). Psychological factors were identified as significant contributors to pruritus by all participants. Post-consultation, 4/5 of participants completed a survey, reporting high levels of distress (average 74/100 VAS) and favoring online or hybrid treatment options. Dermatological treatment alone often fails to address psychological aspects in patients with chronic inflammatory skin diseases. These findings emphasize the need for integrated dermatological and psychological treatment, with telemedicine offering a valuable avenue to improve access and foster interdisciplinary collaboration.

摘要

瘙痒是慢性炎症性皮肤病的一个突出症状,严重影响生活质量。心理压力会加剧瘙痒并使皮肤状况恶化,但在临床常规中,心理方面的问题往往没有得到充分解决。虽然在德语国家,心理皮肤病学治疗越来越普及,但大多局限于专科医院,许多患者难以获得。本研究旨在探索德语地区慢性炎症性皮肤病患者未得到满足的需求,并评估远程医疗在弥合现有心理皮肤病学护理差距方面的潜在作用。通过自身免疫性疾病患者网络邀请慢性炎症性皮肤病患者参加与持牌心理治疗师的免费视频咨询。分析了关于疾病、瘙痒和痛苦的定量数据,以及咨询和调查中的定性反馈。在收到时事通讯的174人中,124人打开了它,16人点击了预约链接。在一个多月的时间里,5名患者(平均年龄40.4岁,均为女性)参加了心理皮肤病学视频咨询。所有患者都患有慢性炎症性皮肤病,正在接受皮肤科护理,但仅靠皮肤科方法治疗感觉不充分。多模式护理的障碍包括缺乏认识、距离专科医院较远以及等待时间过长。三名参与者报告有瘙痒,视觉模拟量表(VAS)平均强度为75/100。所有参与者都认为心理因素是瘙痒的重要促成因素。咨询后,4/5的参与者完成了一项调查,报告了高度痛苦(平均VAS为74/100),并倾向于在线或混合治疗方案。仅靠皮肤科治疗往往无法解决慢性炎症性皮肤病患者的心理问题。这些发现强调了综合皮肤科和心理治疗的必要性,远程医疗为改善可及性和促进跨学科合作提供了一条宝贵途径。

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