Noorian Kobra, Masoudi Reza, Rafiee-Vardanjani Leila, Etemadifar Shahram, Rabiei Leili, Doosti-Irani Mehri
Department of Operating Room, School of Nursing and Midwifery, Shahrekord University of Medical Sciences, Shahr-e-Kord, Iran.
Community-Oriented Nursing Midwifery Research Center, School of Nursing and Midwifery, Shahrekord University of Medical Sciences, Shahr-e-Kord, Iran.
J Educ Health Promot. 2025 Feb 28;14:70. doi: 10.4103/jehp.jehp_1776_23. eCollection 2025.
Caregivers of stroke patients always have various concerns in the process of patient care, which requires the full attention and support of healthcare professionals. Understanding their needs is essential for careful care planning. The present study aimed to discover and explain the needs of caregivers for stroke patients.
This qualitative content analysis was conducted with 24 purposefully selected participants who provide home care for stroke patients in Chaharmahal and Bakhtiari province, Iran, during 2019-2020. Data gathering was done through semi-structured interviews. Conventional content analysis was done, and trustworthiness was investigated through peer checking, member checking, and prolonged engagement based on Lincoln and Guba's criteria.
The main emerged themes showed caregivers' needs including physical empowerment (to overcome overwhelming care and physical exhaustion, and caregivers' deficit attention to self-care), emotional-social empowerment (to relieve caregivers' mental exhaustion, disrupted family relationships, and disrupted social relations), coping with stigma (to cope with stigma of guilt and fear of others' reactions and stigma of delegated care), and dynamics educational needs (big concern of hospital discharge and home care, constant effort to learn, and seeking help).
The basic, complex, and multidimensional needs of caregivers are unmet. Forgotten caregivers are afraid of hospital discharge and home care. Formal organizations for training and support, providing temporary cares, and planning for destigmatizing the delegated care of relatives are required.
中风患者的照料者在患者护理过程中总是有各种担忧，这需要医护人员的充分关注和支持。了解他们的需求对于精心的护理计划至关重要。本研究旨在发现并解释中风患者照料者的需求。
本定性内容分析选取了24名有目的地挑选出的参与者，他们于2019 - 2020年期间在伊朗恰哈马哈勒和巴赫蒂亚里省为中风患者提供家庭护理。通过半结构化访谈收集数据。进行了常规内容分析，并根据林肯和古巴的标准，通过同行检查、成员检查和长期参与来调查可信度。
主要出现的主题显示了照料者的需求，包括身体赋能（以克服压倒性的护理负担和身体疲惫，以及照料者对自我护理的关注不足）、情感 - 社会赋能（以缓解照料者的精神疲惫、家庭关系破裂和社会关系破裂）、应对污名（以应对内疚的污名以及对他人反应的恐惧和委托护理的污名）以及动态教育需求（对出院和家庭护理的极大关注、持续学习的努力以及寻求帮助）。
照料者的基本、复杂和多维度需求未得到满足。被遗忘的照料者害怕出院和家庭护理。需要有正式的组织来提供培训和支持、提供临时护理，并计划消除对亲属委托护理的污名化。
