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揭示类风湿关节炎有效管理的关键技能:一项质性扎根理论研究

Uncovering essential skills for effective rheumatoid arthritis management: A qualitative grounded theory study.

作者信息

Bounabe Abdelaaziz, Elammare Siham, Janani Saadia

机构信息

Immunogenetics and Human Pathology (LIGEP), Faculty of Medicine and Pharmacy, Hassan II University, Casablanca, Morocco.

出版信息

J Educ Health Promot. 2025 Feb 28;14:47. doi: 10.4103/jehp.jehp_1384_24. eCollection 2025.

Abstract

BACKGROUND

Effective management of rheumatoid arthritis (RA) relies on patients acquiring a specific set of skills. Patient education is a promising approach to achieve this. Despite extensive research in this area, a complete understanding of the necessary skills for persons living with RA remains elusive. This study aims to identify the essential skills required for individuals with RA, develop a hierarchical framework, and provide insights for targeted therapeutic education programs.

MATERIALS AND METHODS

A qualitative approach using constructivist grounded theory was employed. Semi-structured interviews were conducted with (23) medical professionals specializing in RA and (16) RA patients. The data were analyzed using Atlas.ti software.

RESULTS

Six major themes emerged: self-care and coping, emotional and psychological resilience, knowledge and literacy in RA, personal development, communication and relationship building, and self-learning and problem-solving. These themes suggest a hierarchical structure, with knowledge serving as the foundation and progressing to more complex skills such as problem-solving and communication.

CONCLUSION

This study provides an overview of the multifaceted nature of the skills required for optimal RA management. The proposed hierarchical structure offers a robust framework for developing targeted therapeutic education programs. The findings highlight the significance of a patient-centered approach in the effective management of RA.

摘要

背景

类风湿关节炎(RA)的有效管理依赖于患者掌握一系列特定技能。患者教育是实现这一目标的一种有前景的方法。尽管在该领域进行了广泛研究,但对类风湿关节炎患者所需必要技能的全面理解仍不明确。本研究旨在确定类风湿关节炎患者所需的基本技能,制定一个层次框架,并为有针对性的治疗教育项目提供见解。

材料与方法

采用建构主义扎根理论的定性方法。对23名类风湿关节炎专科医疗专业人员和16名类风湿关节炎患者进行了半结构式访谈。使用Atlas.ti软件对数据进行分析。

结果

出现了六个主要主题:自我护理与应对、情绪和心理恢复力、类风湿关节炎的知识与素养、个人发展、沟通与关系建立以及自我学习与问题解决。这些主题显示出一种层次结构,知识作为基础,进而发展到更复杂的技能,如问题解决和沟通。

结论

本研究概述了类风湿关节炎最佳管理所需技能的多面性。所提出的层次结构为制定有针对性的治疗教育项目提供了一个有力框架。研究结果突出了以患者为中心的方法在类风湿关节炎有效管理中的重要性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e223/11939986/5788409c8648/JEHP-14-47-g001.jpg

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