Richards Dawn P, Chambers Christine T, Jordan Isabel, Strain Kimberly, Fadaak Raad, Tunnah Louise, Gruenwoldt Emily, Birnie Kathryn A
Patient Partner, Toronto, ON, Canada.
Five02 Labs Inc., Toronto, ON, Canada.
Res Involv Engagem. 2025 Apr 7;11(1):33. doi: 10.1186/s40900-024-00663-2.
Patient engagement is now often expected or required by funders for research projects, initiatives, or networks. Solutions for Kids in Pain (SKIP) is a national knowledge mobilization network in Canada that is on a mission to mobilize evidence-based solutions in children's pain through coordination and collaboration. SKIP began as a Networks of Centres of Excellence-Knowledge Mobilization (NCE-KM) network from 2019 to 2024 and continues as a university-based centre. SKIP was built on a foundation of engaging with patients (children and youth) and caregivers (parents) primarily guided by the Patients Included™ charter.
This paper shares SKIP's leading approach to patient partnership during its time as a NCE-KM network. As required by its NCE funding, SKIP was hosted by an academic institution (Dalhousie University) and co-led by a knowledge user partner (Children's Healthcare Canada), with six hubs across Canada. Here, we demonstrate how SKIP integrated patient partners through its governance, management, committees, and KM activities. We also discuss patient partnership resources developed by SKIP to support its implementation of quality patient partnership practices. Three case examples show in detail how SKIP tailored and evolved its patient partnership approach to specific projects and context. These examples include SKIP's Patient and Caregiver Advisory Committee, a national Youth in Pain project, and integrating patient partners in the co-development of Canada's first national health standard for Pediatric Pain Management. Each case demonstrates foundational principles to SKIP's patient partnership including providing compensation and efforts to create safe and inclusive spaces.
SKIP's commitment to patient partnership is actioned through integrating patient partners throughout all aspects of its work. We share insights gained from SKIP's patient partnership activities during its time as an NCE-KM network, including developed resources and practices. We encourage others to adopt and adapt our learnings and resources for their own work. As SKIP's NCE-KM funding and structure ends and the organization continues as a university-based centre, SKIP remains committed to developing and sharing leading patient partnership practices.
资助者现在通常期望或要求研究项目、倡议或网络让患者参与进来。加拿大的“疼痛儿童解决方案”（SKIP）是一个全国性的知识传播网络，其使命是通过协调与合作来推动基于证据的儿童疼痛解决方案。SKIP在2019年至2024年期间是卓越中心知识传播网络（NCE-KM），之后继续作为一个大学附属中心。SKIP建立在与患者（儿童和青少年）及护理人员（父母）合作的基础上，主要遵循“患者参与”宪章的指导。
本文分享了SKIP在作为NCE-KM网络期间患者伙伴关系的领先方法。根据其NCE资金要求，SKIP由一所学术机构（达尔豪斯大学）主办，并由一位知识使用者伙伴（加拿大儿童医疗保健组织）共同领导，在加拿大各地设有六个中心。在这里，我们展示了SKIP如何通过其治理、管理、委员会和知识传播活动来整合患者伙伴。我们还讨论了SKIP开发的患者伙伴关系资源，以支持其实施高质量的患者伙伴关系实践。三个案例详细展示了SKIP如何根据特定项目和背景调整并发展其患者伙伴关系方法。这些例子包括SKIP的患者和护理人员咨询委员会、一个全国性的疼痛青少年项目，以及将患者伙伴纳入加拿大首个全国性儿科疼痛管理健康标准的共同制定过程。每个案例都展示了SKIP患者伙伴关系的基本原则，包括提供补偿以及努力营造安全和包容的空间。
SKIP对患者伙伴关系的承诺通过在其工作的各个方面整合患者伙伴来实现。我们分享了SKIP在作为NCE-KM网络期间从患者伙伴关系活动中获得的见解，包括开发的资源和实践。我们鼓励其他人采用并调整我们的经验教训和资源以用于他们自己的工作。随着SKIP的NCE-KM资金和结构结束，该组织继续作为一个大学附属中心，SKIP仍然致力于开发和分享领先的患者伙伴关系实践。
