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多模态艺术方法支持下晚期癌症患者的意外事件体验整合。

Integration of experiences of contingency in patients with advanced cancer supported by a multimodal art approach.

作者信息

Weeseman Yvonne, Scherer-Rath Michael, Christophe Nirav, Dörr Henny, Sprangers Mirjam, Helmich Esther, van Poecke Niels, van Laarhoven Hanneke

机构信息

Department of Medical Oncology, Amsterdam University Medical Centers, University of Amsterdam, Amsterdam, The Netherlands.

Cancer Center Amsterdam, Treatment and Quality of Life, Amsterdam, The Netherlands.

出版信息

PLoS One. 2025 Apr 8;20(4):e0319918. doi: 10.1371/journal.pone.0319918. eCollection 2025.

Abstract

To support patients with cancer in a palliative treatment phase with the integration of experiences of contingency into their life narrative, we developed a multi-modal approach: In Search of Stories (ISOS). ISOS consists of the following elements: filling out the self-report RE-LIFE questionnaire, drawing of Rich Pictures, and reading an exemplary story with a spiritual counselor, followed by a co-creation process with a professional artist. In the current article we illustrate how patients moved through the process of integration of experiences of contingency during the meetings of ISOS by presenting two case descriptions. All meetings of the first two patients who completed the ISOS project were audio recorded, imported into Atlas-Ti and analyzed by applying a phenomenological approach to deepen our understanding of the patient's experiences throughout the meetings. The two cases showed distinct differences on how the experience of contingency was dealt with and how the integration of experiences of contingency into the life narrative unfolded. Patients focused on life goals and values concerning connection with loved ones, and on leaving a legacy behind, which was expressed through creating a work of art. The current study provides preliminary insight into how patients can go through a process of integration of experiences of contingency into their life narrative, which could inform the development of future support for patients with advanced cancer dealing with experiences of contingency. Specifically, offering patients possibilities to express themselves through materials within an artistic setting could support these patients to find new words and additional non-linguistic ways of expressing their experiences, and thereby facilitate the integration of experiences of contingency into their life narrative.

摘要

为了帮助处于姑息治疗阶段的癌症患者将意外经历融入他们的生命故事中,我们开发了一种多模式方法:寻找故事(ISOS)。ISOS 由以下元素组成:填写自我报告式的 RE-LIFE 问卷、绘制丰富图片、与精神顾问阅读一个示例故事,随后与专业艺术家进行共创过程。在本文中,我们通过呈现两个案例描述来说明患者在 ISOS 会议期间如何经历意外经历的整合过程。完成 ISOS 项目的前两名患者的所有会议都进行了录音,导入到 Atlas-Ti 中,并应用现象学方法进行分析,以加深我们对患者在整个会议中的经历的理解。这两个案例在如何处理意外经历以及意外经历如何融入生命故事方面表现出明显差异。患者关注与亲人联系的生活目标和价值观,以及留下遗产,这通过创作一件艺术品来表达。本研究初步洞察了患者如何将意外经历融入他们的生命故事的过程,这可以为未来为应对意外经历的晚期癌症患者提供支持的发展提供信息。具体而言,为患者提供在艺术环境中通过材料表达自己的可能性,可以支持这些患者找到新的词汇和额外的非语言方式来表达他们的经历,从而促进意外经历融入他们的生命故事。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/09d8/11978074/912240e924a1/pone.0319918.g001.jpg

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