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医疗保健专业人员如何促进慢性阻塞性肺疾病患者的肺康复?一项定性研究。

How can healthcare professionals promote pulmonary rehabilitation in people with COPD? A qualitative study.

作者信息

Hill Kylie, Cavalheri Vinicius, Gucciardi Daniel F, Hug Sarah

机构信息

Curtin School of Allied Health, Curtin University, GPO Box U1987, Perth, Western Australia 6845, Australia.

Curtin School of Allied Health, Curtin University, GPO Box U1987, Perth, Western Australia 6845, Australia; Allied Health, South Metropolitan Health Service, Robin Warren Dr, Murdoch, Western Australia 6150, Australia.

出版信息

Patient Educ Couns. 2025 Jul;136:108781. doi: 10.1016/j.pec.2025.108781. Epub 2025 Apr 8.

Abstract

OBJECTIVE

Despite the evidence for pulmonary rehabilitation programs (PRPs) in people with chronic obstructive pulmonary disease (COPD), uptake of this intervention is suboptimal. Our group recently noted novel barriers to the uptake of PRPs in people with COPD, such as feeling unworthy of healthcare. Little is known about factors that contribute to this feeling. We explored autobiographical experiences of the interaction between HCPs and people with COPD at the time a PRP was recommended as an appropriate intervention.

METHODS

This qualitative study was guided by a critical realist perspective. Both HCPs and people with COPD were recruited from tertiary hospitals. Questions were based on the theoretical domains framework and explored the determinants of behaviour related to initiating a referral to a PRP and the person with COPD enrolling in a program. Interview transcripts were analysed using reflexive thematic analysis.

RESULTS

Data were available on 15 participants with COPD and 38 HCPs. The first theme was that the HCP needed to care for the person and not just treat a disease. Subthemes pertained to language and behaviours of the HCP including, (i) actively listening, (ii) demonstrating genuine empathy, (iii) establishing trust and, (iv) empowering the person with COPD to engage in shared decision-making. The second theme was that the HCP needed to instil hope that pulmonary rehabilitation would benefit the person with COPD. Subthemes comprised; (i) enthusiasm of the referrer and sharing their vicarious experiences that PRPs have helped others, (ii) describing the intervention, allaying fears and personalising a positive outcome following program completion, (iii) having a physician endorse the PRP, (iv) using terms other than 'pulmonary rehabilitation'.

CONCLUSIONS

These data provide a blueprint for interactions in which HCPs can foster people with COPD to accept a referral to a PRP, in a manner that translates to enrolment in a program.

摘要

目的

尽管有证据表明慢性阻塞性肺疾病(COPD)患者可从肺康复计划(PRP)中获益,但该干预措施的采用率仍不理想。我们团队最近发现了COPD患者接受PRP存在的新障碍,比如觉得自己不值得接受医疗服务。对于导致这种感觉的因素,我们知之甚少。我们探讨了在推荐PRP作为合适干预措施时,医护人员与COPD患者之间互动的自传式经历。

方法

本定性研究以批判实在论为指导。医护人员和COPD患者均从三级医院招募。问题基于理论领域框架,探讨了与启动PRP转诊及COPD患者参与项目相关行为的决定因素。访谈记录采用反思性主题分析法进行分析。

结果

获得了15名COPD患者和38名医护人员的数据。第一个主题是医护人员需要关心患者,而不仅仅是治疗疾病。子主题涉及医护人员的语言和行为,包括:(i)积极倾听;(ii)表现出真正的同理心;(iii)建立信任;(iv)使COPD患者有能力参与共同决策。第二个主题是医护人员需要向患者灌输肺康复对COPD患者有益的希望。子主题包括:(i)转诊者的热情以及分享他们从PRP对他人有帮助的间接经验;(ii)描述干预措施,消除恐惧并个性化项目完成后的积极结果;(iii)让医生认可PRP;(iv)使用“肺康复”以外的术语。

结论

这些数据提供了一个互动蓝图,医护人员可以通过这种方式促使COPD患者接受PRP转诊,并最终参与项目。

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