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视障人士的康复:基于家庭成员和患者认知的经验及相关性

Rehabilitation of Visually Impaired People: Experiences and Relevance According to the Perception of Family Members and Patients.

作者信息

Fernandes Ana Cláudia, de Moraes Yara, Silva Carvalho Pedro Henrique, Ietto Montilha Rita de Cassia, Carmine Florencia, Sandoval Cristian, Landim Síbila Floriano, Álvarez Nicolás Márquez, Rodriguez-Martin Dolors

机构信息

School of Medical Sciences, University of Campinas, Campinas 13083-887, Brazil.

Carrera de Medicina, Facultad de Medicina, Universidad de La Frontera, Temuco 4811230, Chile.

出版信息

Healthcare (Basel). 2025 Mar 24;13(7):712. doi: 10.3390/healthcare13070712.

Abstract

: This study aims to explore the perceptions of visually impaired patients and their families regarding rehabilitation. : A qualitative, descriptive, and cross-sectional design was employed, incorporating data from semi-structured interviews conducted with patients and their families as part of a broader project. Data were analyzed using a content analysis approach to address the study's objectives. : The findings identified three primary categories based on interviews with nine patients and six family members: (A) the impact of rehabilitation on autonomy and identity formation; (B) the significance of professional training, experience, and assistive technology in rehabilitation; and (C) the effects of rehabilitation on patients and their families. : Patients and their families deemed rehabilitation essential for fostering autonomy and independence in daily activities. A multidisciplinary approach, emphasizing professional training that integrates health, rehabilitation, and education, was found to be vital.

摘要

本研究旨在探讨视力受损患者及其家属对康复的看法。采用了定性、描述性和横断面设计,纳入了作为一个更广泛项目一部分对患者及其家属进行的半结构化访谈数据。使用内容分析方法对数据进行分析以实现研究目标。根据对9名患者和6名家庭成员的访谈,研究结果确定了三个主要类别:(A)康复对自主性和身份形成的影响;(B)专业培训、经验和辅助技术在康复中的重要性;(C)康复对患者及其家庭的影响。患者及其家属认为康复对于促进日常活动中的自主性和独立性至关重要。人们发现,强调将健康、康复和教育整合在一起的专业培训的多学科方法至关重要。

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[Mothers of visually impaired children: difficult and easy aspects faced in care].
Rev Gaucha Enferm. 2013 Jun;34(2):86-92. doi: 10.1590/s1983-14472013000200011.

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