Kasteleijn-Nolst Trenité Dorothée, Acharya Jayant, Baumer Fiona Mitchell, Beran Roy, Craiu Dana, French Jaqueline, Parisi Pasquale, Solodar Jessica, Szaflarski Jerzy P, Takahashi Yukitoshi, Thio Liu Lin, Tolchin Ben, Wilkins Arnold, Fisher Robert S
Nesmos Department Sapienza University Rome Italy.
Department of Neurosurgery and Epilepsy, University hospital Utrecht, The Netherlands.
Epilepsy Behav Rep. 2025 Feb 10;30:100753. doi: 10.1016/j.ebr.2025.100753. eCollection 2025 Jun.
Clinical experts associated with national epilepsy-related societies, led by the Epilepsy Foundation, collected, collated and answered "Frequently asked questions (FAQ)" of broad interest pertaining to visually-provoked seizures. Questions emerged from people with epilepsy, caretakers and healthcare professionals from different countries around the world. Focus is on practical implications of visually-provoked seizures. The top 5 most frequently asked questions were.1.How does a doctor make a diagnosis of visually-provoked seizures?2.What can I do in general to prevent visually-provoked seizures?3.Will I need antiseizure medications for my visually-provoked seizures?"4.Will I outgrow visually-provoked seizures? How will I know if I've outgrown them?5.How do I enable safety features to block content that could trigger seizures on social media, websites, phones, laptops and tablets?Answers were based on scientific evidence, where such information was available [1] and expert opinion when formal evidence was insufficient. Key answers included distinction of photoparoxysmal EEG findings versus light-provoked seizures. Typical provocation is by flashes at 10-25 per second or certain moving patterns. There is a genetic risk, which is outgrown in about half. Covering one or both eyes can prevent a light-provoked seizure. TV, videogames, virtual reality and 3D images are not in themselves provocative, but their content can be. Topics covered included: 1. Photosensitive epilepsy diagnosis; 2. Preventing visually-provoked seizures; 3. Do treatments help; 4. Life and behavioral decisions; 5. School; 6. Multi-media; 7. Children and youth.
由癫痫基金会牵头，与各国癫痫相关协会的临床专家收集、整理并回答了与视觉诱发性癫痫发作相关的广泛关注的“常见问题”。这些问题来自世界各地患有癫痫的人、护理人员和医疗保健专业人员。重点是视觉诱发性癫痫发作的实际影响。最常被问到的5个问题是：1. 医生如何诊断视觉诱发性癫痫发作？2. 一般来说，我能做些什么来预防视觉诱发性癫痫发作？3. 我的视觉诱发性癫痫发作需要使用抗癫痫药物吗？4. 我的视觉诱发性癫痫发作会随着年龄增长而自愈吗？我如何知道自己是否已经自愈？5. 我如何启用安全功能来屏蔽社交媒体、网站、手机、笔记本电脑和平板电脑上可能引发癫痫发作的内容？答案基于现有科学证据[1]，在正式证据不足时则基于专家意见。关键答案包括光阵发性脑电图结果与光诱发性癫痫发作的区别。典型的诱发因素是每秒10 - 25次的闪光或某些移动模式。存在遗传风险，约一半患者会随着年龄增长而自愈。遮住一只或两只眼睛可以预防光诱发性癫痫发作。电视、电子游戏、虚拟现实和3D图像本身不会诱发癫痫发作，但它们的内容可能会。涵盖的主题包括：1. 光敏性癫痫的诊断；2. 预防视觉诱发性癫痫发作；3. 治疗是否有帮助；4. 生活和行为决策；5. 学校；6. 多媒体；7. 儿童和青少年。
