Tahmasebi Neda, Zarifian Talieh, Ashtari Atieh, Biglarian Akbar, Memarzadeh Mehrdad, Tahmasebi Garmatani Siyamak, Larimian Marjan
Department of Speech Therapy, Pediatric Neurorehabilitation Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
Department of Biostatistics and Epidemiology, Social Determinants of Health Research Center, Social Health Research Institute, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
Iran J Child Neurol. 2025;19(2):39-49. doi: 10.22037/ijcn.v19i2.45318. Epub 2025 Mar 11.
Maintaining and enhancing patients' quality of life (QoL) are considered the most significant objectives in healthcare systems. These objectives are directly associated with the intervention of healthcare providers across the globe. This study aimed to evaluate the health-related quality of life (HRQoL) of toddlers who have undergone interventions for oral clefts and compare it with a healthy control group.
MATERIALS & METHODS: The present study is cross-sectional. Thirty-six toddlers aged 18 to 36 months with oral clefts undergoing team care were recruited from a pediatric hospital and matched with healthy peers based on inclusion criteria. Demographic characteristics were collected before the TNO-AZL preschool children's quality of life (TAPQoL) questionnaire was completed.
The QoL was compared to an overall score and the average score of items and domains on the TAPQoL questionnaire between the groups. The results showed a significant difference between the two groups in social functioning (t=2.96, p = 0.004), cognitive functioning (t=2.21, p = 0.03), emotional functioning (t=3.99, p<0.01), and the total score (p<0.001). However, no significant difference was observed in physical functioning (t= 0.78, p=0.43), and toddlers with oral clefts had more reasonable scores.
The QoL of toddlers with oral clefts who received care from a multidisciplinary team was slightly better than that of the healthy group. Therefore, participating in these teams could lead these children to a similar QoL as their peers. Medical systems can provide easy accessibility to cleft care teams for patients and their families.
维持和提高患者的生活质量(QoL)被认为是医疗保健系统中最重要的目标。这些目标与全球医疗保健提供者的干预直接相关。本研究旨在评估接受过口腔腭裂干预的幼儿的健康相关生活质量(HRQoL),并将其与健康对照组进行比较。
本研究为横断面研究。从一家儿科医院招募了36名年龄在18至36个月、正在接受团队护理的口腔腭裂幼儿,并根据纳入标准与健康同龄人进行匹配。在完成TNO-AZL学龄前儿童生活质量(TAPQoL)问卷之前,收集人口统计学特征。
比较了两组在TAPQoL问卷上的总体得分以及项目和领域的平均得分。结果显示,两组在社会功能(t=2.96,p = 0.004)、认知功能(t=2.21,p = 0.03)、情感功能(t=3.99,p<0.01)和总分(p<0.001)方面存在显著差异。然而,在身体功能方面未观察到显著差异(t= 0.78,p=0.43),且口腔腭裂幼儿的得分更合理。
接受多学科团队护理的口腔腭裂幼儿的生活质量略优于健康组。因此,参与这些团队可以使这些儿童的生活质量与同龄人相似。医疗系统可以为患者及其家属提供方便地获得腭裂护理团队服务的途径。