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对接受团队护理的非综合征性波斯裔口面部裂隙幼儿的健康相关生活质量进行评估,并与对照组进行比较。

Evaluation of the Health-Related Quality of Life in Non-Syndromic Persian Toddlers with Orofacial Clefts Undergoing Team Care and Compared with a Control Group.

作者信息

Tahmasebi Neda, Zarifian Talieh, Ashtari Atieh, Biglarian Akbar, Memarzadeh Mehrdad, Tahmasebi Garmatani Siyamak, Larimian Marjan

机构信息

Department of Speech Therapy, Pediatric Neurorehabilitation Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.

Department of Biostatistics and Epidemiology, Social Determinants of Health Research Center, Social Health Research Institute, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.

出版信息

Iran J Child Neurol. 2025;19(2):39-49. doi: 10.22037/ijcn.v19i2.45318. Epub 2025 Mar 11.

Abstract

OBJECTIVES

Maintaining and enhancing patients' quality of life (QoL) are considered the most significant objectives in healthcare systems. These objectives are directly associated with the intervention of healthcare providers across the globe. This study aimed to evaluate the health-related quality of life (HRQoL) of toddlers who have undergone interventions for oral clefts and compare it with a healthy control group.

MATERIALS & METHODS: The present study is cross-sectional. Thirty-six toddlers aged 18 to 36 months with oral clefts undergoing team care were recruited from a pediatric hospital and matched with healthy peers based on inclusion criteria. Demographic characteristics were collected before the TNO-AZL preschool children's quality of life (TAPQoL) questionnaire was completed.

RESULTS

The QoL was compared to an overall score and the average score of items and domains on the TAPQoL questionnaire between the groups. The results showed a significant difference between the two groups in social functioning (t=2.96, p = 0.004), cognitive functioning (t=2.21, p = 0.03), emotional functioning (t=3.99, p<0.01), and the total score (p<0.001). However, no significant difference was observed in physical functioning (t= 0.78, p=0.43), and toddlers with oral clefts had more reasonable scores.

CONCLUSION

The QoL of toddlers with oral clefts who received care from a multidisciplinary team was slightly better than that of the healthy group. Therefore, participating in these teams could lead these children to a similar QoL as their peers. Medical systems can provide easy accessibility to cleft care teams for patients and their families.

摘要

目的

维持和提高患者的生活质量(QoL)被认为是医疗保健系统中最重要的目标。这些目标与全球医疗保健提供者的干预直接相关。本研究旨在评估接受过口腔腭裂干预的幼儿的健康相关生活质量(HRQoL),并将其与健康对照组进行比较。

材料与方法

本研究为横断面研究。从一家儿科医院招募了36名年龄在18至36个月、正在接受团队护理的口腔腭裂幼儿,并根据纳入标准与健康同龄人进行匹配。在完成TNO-AZL学龄前儿童生活质量(TAPQoL)问卷之前,收集人口统计学特征。

结果

比较了两组在TAPQoL问卷上的总体得分以及项目和领域的平均得分。结果显示,两组在社会功能(t=2.96,p = 0.004)、认知功能(t=2.21,p = 0.03)、情感功能(t=3.99,p<0.01)和总分(p<0.001)方面存在显著差异。然而,在身体功能方面未观察到显著差异(t= 0.78,p=0.43),且口腔腭裂幼儿的得分更合理。

结论

接受多学科团队护理的口腔腭裂幼儿的生活质量略优于健康组。因此,参与这些团队可以使这些儿童的生活质量与同龄人相似。医疗系统可以为患者及其家属提供方便地获得腭裂护理团队服务的途径。

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本文引用的文献

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Self-Esteem and Oral Health-Related Quality of Life within a Cleft Lip and/or Palate Population: A Prospective Cohort Study.
Int J Environ Res Public Health. 2021 Jun 4;18(11):6078. doi: 10.3390/ijerph18116078.
3
Evaluation of Facial Appearance-Related Quality of Life in Young Japanese Patients With Cleft Lip and/or Palate.
Cleft Palate Craniofac J. 2022 Apr;59(4_suppl2):S57-S64. doi: 10.1177/10556656211023243. Epub 2021 Jun 16.
6
Changes in the Oral Health-Related Quality of Life in Infants With Cleft Lip and/or Palate Before and After Surgical Treatment.
Cleft Palate Craniofac J. 2022 Jan;59(1):47-53. doi: 10.1177/1055665621993282. Epub 2021 Feb 25.
7
Quality of Life Using General Population Validated Questionnaires in Children With Cleft Lip and/or Palate in New Zealand.
Cleft Palate Craniofac J. 2021 Jun;58(6):779-786. doi: 10.1177/1055665620962371. Epub 2020 Sep 30.
8
Early Speech and Language Development in Children With Nonsyndromic Cleft Lip and/or Palate: A Meta-Analysis.
J Speech Lang Hear Res. 2019 Dec 13;63(1):14-31. doi: 10.1044/2019_JSLHR-19-00162. Print 2020 Jan 22.
9
The Impact of Social Stigma for Children with Cleft Lip and/or Palate in Low-resource Areas: A Systematic Review.
Plast Reconstr Surg Glob Open. 2019 Oct 28;7(10):e2487. doi: 10.1097/GOX.0000000000002487. eCollection 2019 Oct.
10
Facilitating Positive Psychosocial Outcomes in Craniofacial Team Care: Strategies for Medical Providers.
Cleft Palate Craniofac J. 2020 Mar;57(3):333-343. doi: 10.1177/1055665619868052. Epub 2019 Aug 25.

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