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成人姑息治疗与晚期心血管疾病:不仅仅是临终关怀——美国心脏协会的科学声明

Palliative Care and Advanced Cardiovascular Disease in Adults: Not Just End-of-Life Care: A Scientific Statement From the American Heart Association.

作者信息

Graven Lucinda J, Kitko Lisa, Abshire Saylor Martha, Allen Larry, Durante Angela, Evangelista Lorraine S, Fiedler Amy, Kirkpatrick James, Mixon Lakeisha, Wells Rachel

出版信息

Circulation. 2025 May 27;151(21):e1030-e1042. doi: 10.1161/CIR.0000000000001323. Epub 2025 Apr 17.

Abstract

Cardiovascular disease remains a leading cause of morbidity and mortality in adults despite recent scientific advancements. Although people are living longer lives, there may be an adverse impact on quality of life, necessitating a greater need for palliative care services and support. Palliative care for adults with advanced cardiovascular disease has the potential to significantly improve quality of life for individuals living with cardiovascular disease and their informal care partners. Effective communication, shared decision-making, age-friendly care principles, and advance care planning are vital components of palliative care and support comprehensive and holistic care throughout the advanced cardiovascular disease trajectory and across care settings. Current evidence highlights the benefits of palliative care in managing symptoms, reducing psychological distress, and supporting both people with cardiovascular disease and their care partners. However, significant gaps exist in palliative care research related to non-heart failure populations, care partner outcomes, and palliative care implementation in diverse populations. This scientific statement (1) discusses the application of effective communication, shared decision-making, age-friendly care, and advance care planning in advanced cardiovascular disease palliative care; (2) provides a summary of recent evidence related to palliative care and symptom management, quality of life, spiritual and psychological support, and bereavement support in individuals with advanced cardiovascular disease and their care partners; (3) discusses issues involving diversity, equity, and inclusion in cardiovascular disease palliative care; (4) highlights the ethical and legal concerns surrounding palliative care and implanted cardiac devices; and (5) provides strategies for palliative care engagement in adults with advanced cardiovascular disease for the care team.

摘要

尽管最近有科学进展,但心血管疾病仍然是成年人发病和死亡的主要原因。虽然人们的寿命越来越长,但这可能会对生活质量产生不利影响,因此对姑息治疗服务和支持的需求更大。为患有晚期心血管疾病的成年人提供姑息治疗有可能显著提高患有心血管疾病的个人及其非正式护理伙伴的生活质量。有效的沟通、共同决策、关爱老年人的护理原则和预先护理计划是姑息治疗的重要组成部分,并在晚期心血管疾病的整个病程和不同护理环境中支持全面和整体护理。目前的证据强调了姑息治疗在管理症状、减轻心理困扰以及支持心血管疾病患者及其护理伙伴方面的益处。然而,在与非心力衰竭人群、护理伙伴结局以及不同人群中姑息治疗实施相关的姑息治疗研究方面存在重大差距。本科学声明:(1) 讨论有效沟通、共同决策、关爱老年人的护理和预先护理计划在晚期心血管疾病姑息治疗中的应用;(2) 总结了近期与晚期心血管疾病患者及其护理伙伴的姑息治疗和症状管理、生活质量、精神和心理支持以及丧亲之痛支持相关的证据;(3) 讨论了心血管疾病姑息治疗中涉及多样性、公平性和包容性的问题;(4) 强调了围绕姑息治疗和植入式心脏设备的伦理和法律问题;(5) 为护理团队提供了针对患有晚期心血管疾病的成年人开展姑息治疗的策略。

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