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对患有多发性硬化症的西班牙裔成年人运动偏好的定性研究。

A Qualitative Inquiry of Exercise Preferences among Hispanic Adults with Multiple Sclerosis.

作者信息

Silveira Stephanie L, Motl Robert W, Ontiveros Tania, Flores Victoria

机构信息

Department of Kinesiology, Health Promotion, and Recreation, University of North Texas, Denton, TX, USA (SLS, TO).

Department of Management, Policy, and Community Health, University of Texas Health Science Center at Houston, Houston, TX, USA (SLS).

出版信息

Am J Lifestyle Med. 2025 Apr 16:15598276251334360. doi: 10.1177/15598276251334360.

DOI:10.1177/15598276251334360
PMID:40255267
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12003335/
Abstract

This study aimed to identify the components of an ideal exercise training program for Hispanics with multiple sclerosis (MS), cultural adaptations, and avenues for dissemination of information to this population. Online, semi-structured interviews were conducted with 27 adults with MS who identified as Hispanic. A deductive content analysis approach was applied for assessing necessary and desired components of an exercise program. Participants articulated preferences for "what," "when," "where," and "who" of exercise programs. All participants expressed an interest in aerobic training (n = 27) and need for resistance (n = 14), flexibility (n = 8), and neuromotor components (n = 10; what). The most commonly mentioned exercise frequency was 3-5 times per week (n = 21; when). The locations included home- or community-based exercise (where), supported through coaching (n = 13) or group (n = 14) delivery with a minority preferring autonomous exercise (n = 5) (who). Cultural adaptations for Hispanics included language, cultural norms, priorities, music/dance, and instructor characteristics. Further, participants provided suggestions for future advertising of exercise programs and resources such as MS-specific websites and health care providers. This study provides guidance for creating a culturally tailored, structured exercise programs for Hispanics with MS that may fill a significant gap in available rehabilitation resources for the subgroup.

摘要

本研究旨在确定针对患有多发性硬化症(MS)的西班牙裔人群的理想运动训练计划的组成部分、文化适应性,以及向该人群传播信息的途径。对27名自我认定为西班牙裔的成年MS患者进行了在线半结构化访谈。采用演绎性内容分析法来评估运动计划的必要和期望组成部分。参与者明确表达了对运动计划的“内容”“时间”“地点”和“实施者”的偏好。所有参与者都表示对有氧训练感兴趣(n = 27),并且需要抗阻训练(n = 14)、柔韧性训练(n = 8)和神经运动训练(n = 10;内容)。最常提到的运动频率是每周3 - 5次(n = 21;时间)。地点包括居家或社区运动(地点),通过教练指导(n = 13)或小组训练(n = 14)来支持,少数人更喜欢自主运动(n = 5)(实施者)。针对西班牙裔的文化适应性包括语言、文化规范、优先事项、音乐/舞蹈以及教练特点。此外,参与者还为运动计划的未来宣传以及诸如特定于MS的网站和医疗保健提供者等资源提供了建议。本研究为为患有MS的西班牙裔人群制定文化上量身定制的结构化运动计划提供了指导,这可能填补该亚组现有康复资源中的重大空白。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ee06/12003335/d3b354c45615/10.1177_15598276251334360-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ee06/12003335/d3b354c45615/10.1177_15598276251334360-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ee06/12003335/d3b354c45615/10.1177_15598276251334360-fig1.jpg

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Social Cognitive Theory Variables as Correlates of Physical Activity Behavior Among Hispanics With Multiple Sclerosis.社会认知理论变量与多发性硬化症西班牙裔人群身体活动行为的相关性。
Arch Phys Med Rehabil. 2024 Jun;105(6):1083-1088. doi: 10.1016/j.apmr.2024.01.009. Epub 2024 Jan 26.
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Health Disparities in Multiple Sclerosis among Hispanic and Black Populations in the United States.
美国西班牙裔和黑人人群中多发性硬化症的健康差异
Biomedicines. 2023 Apr 20;11(4):1227. doi: 10.3390/biomedicines11041227.
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Population-Based Estimates for the Prevalence of Multiple Sclerosis in the United States by Race, Ethnicity, Age, Sex, and Geographic Region.基于人群的美国多发性硬化症患病率估计值:按种族、民族、年龄、性别和地理区域划分。
JAMA Neurol. 2023 Jul 1;80(7):693-701. doi: 10.1001/jamaneurol.2023.1135.
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Eval Program Plann. 2023 Apr;97:102243. doi: 10.1016/j.evalprogplan.2023.102243. Epub 2023 Jan 21.
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