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绘制针对癌症青少年的教育干预措施的证据图谱:一项范围综述方案

Mapping evidence on educational interventions for adolescents with cancer: a scoping review protocol.

作者信息

Kyei-Dompim Joana, Kuupiel Desmond, Diji Abigail Kusi-Amponsah, Ncama Busisiwe Purity

机构信息

School of Nursing and Midwifery, Kwame Nkrumah University of Science and Technology, Kumasi, Ghana

School of Nursing and Public Health, University of KwaZulu-Natal College of Health Sciences, Durban, South Africa.

出版信息

BMJ Open. 2025 Apr 22;15(4):e093137. doi: 10.1136/bmjopen-2024-093137.

DOI:10.1136/bmjopen-2024-093137
PMID:40262964
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12015717/
Abstract

INTRODUCTION

Adolescents diagnosed with cancer face unique challenges that can significantly impact their physical, emotional and social well-being. Educational interventions are essential in providing these young patients with the knowledge and skills necessary to navigate their cancer journey effectively. This scoping review aims to map the existing evidence on educational interventions tailored for adolescents with cancer, identifying gaps in the literature and informing future research and practice.

METHODS AND ANALYSIS

The review will follow a systematic scoping review as outlined by the Joanna Briggs Institute. A preliminary search was conducted in June 2024 with the PubMed database. This will be followed by a comprehensive search strategy across multiple databases, including PubMed, SCOPUS, WoS, PsycINFO, GIM and CINAHL, to identify relevant literature published in English. All types of educational interventions targeting adolescents with cancer will be included, while studies focusing on non-cancer populations or published in non-English languages will be excluded. Data extraction will be conducted by two independent reviewers using a standardised tool, and qualitative content analysis will be performed to summarise the findings. The results will be presented in tables and figures, adhering to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses: Extension for Scoping Reviews guidelines. This scoping review has been registered with Open Science Framework (https://osf.io/7p93v).

ETHICS AND DISSEMINATION

As this scoping review will use secondary data from published literature, ethical approval is not required. The findings will be disseminated through peer-reviewed publications, conference presentations and stakeholder engagement.

摘要

引言

被诊断患有癌症的青少年面临着独特的挑战,这些挑战会对他们的身体、情感和社会福祉产生重大影响。教育干预对于为这些年轻患者提供有效应对癌症历程所需的知识和技能至关重要。本范围综述旨在梳理针对患癌青少年的教育干预的现有证据,找出文献中的空白,并为未来的研究和实践提供参考。

方法与分析

本综述将遵循乔安娜·布里格斯研究所概述的系统范围综述方法。2024年6月在PubMed数据库进行了初步检索。随后将在多个数据库(包括PubMed、SCOPUS、WoS、PsycINFO、GIM和CINAHL)中开展全面检索策略,以识别用英文发表的相关文献。将纳入所有针对患癌青少年的各类教育干预,而聚焦于非癌症人群或用非英语发表的研究将被排除。数据提取将由两名独立评审员使用标准化工具进行,并将进行定性内容分析以总结研究结果。结果将以表格和图表形式呈现,遵循系统评价与Meta分析扩展版:范围综述报告规范指南。本范围综述已在开放科学框架(https://osf.io/7p93v)注册。

伦理与传播

由于本范围综述将使用已发表文献中的二手数据,无需伦理批准。研究结果将通过同行评审出版物、会议报告和利益相关者参与进行传播。

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本文引用的文献

1
Global cancer statistics for adolescents and young adults: population based study.全球青少年和青年癌症统计数据:基于人群的研究。
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Mobile health interventions for cancer patient education: A scoping review.用于癌症患者教育的移动健康干预措施:一项范围综述。
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Updating the Definition of Cancer.更新癌症定义。
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4
The effect of a peer-assisted video-based training programme and counselling to reduce anxiety in children newly diagnosed with cancer: Non-randomised controlled trial.同伴辅助视频培训计划和咨询对降低新诊断癌症儿童焦虑的效果:非随机对照试验。
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5
Cancer Education Interventions in Adolescents: A Systematic Review of Scope and Content.青少年癌症教育干预措施:系统评价的范围和内容。
Health Educ Behav. 2022 Dec;49(6):993-1003. doi: 10.1177/10901981221109142. Epub 2022 Jul 27.
6
Details of Cancer Education Programs for Adolescents and Young Adults and Their Effectiveness: A Scoping Review.青少年和青年癌症教育计划及其效果的详细信息:范围综述。
J Adolesc Young Adult Oncol. 2023 Feb;12(1):9-33. doi: 10.1089/jayao.2021.0160. Epub 2022 Feb 17.
7
Access to and experience of education for children and adolescents with cancer: a scoping review protocol.儿童和青少年癌症患者的教育机会和体验:系统评价研究方案。
Syst Rev. 2021 Jun 7;10(1):167. doi: 10.1186/s13643-021-01723-4.
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Global Cancer Statistics 2020: GLOBOCAN Estimates of Incidence and Mortality Worldwide for 36 Cancers in 185 Countries.《全球癌症统计数据 2020:全球 185 个国家和地区 36 种癌症的发病率和死亡率估计》。
CA Cancer J Clin. 2021 May;71(3):209-249. doi: 10.3322/caac.21660. Epub 2021 Feb 4.
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Educational intervention (CUIDAR) in cancer patients treated with surgery: A quasi-experimental study.教育干预(CUIDAR)在接受手术治疗的癌症患者中的应用:一项准实验研究。
Patient Educ Couns. 2019 Aug;102(8):1475-1482. doi: 10.1016/j.pec.2019.03.002. Epub 2019 Mar 6.
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PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation.PRISMA 扩展用于范围审查 (PRISMA-ScR): 清单和解释。
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