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进行预立医疗照护规划谈话的专业人员的角色自我认定:一项主题分析。

Role self-ascription of professionals conducting advance care planning conversations: A thematic analysis.

作者信息

Sterie Anca-Cristina, Bernard Mathieu, Jox Ralf J, Rubli Truchard Eve

机构信息

Chair of Geriatric Palliative Care, Palliative and Supportive Care Service and Service of Geriatric Medicine and Geriatric Rehabilitation, Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland.

Chair of Palliative Psychology, Service of Palliative and Supportive Care, Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland.

出版信息

Palliat Med. 2025 Jun;39(6):700-708. doi: 10.1177/02692163251331168. Epub 2025 Apr 25.

DOI:10.1177/02692163251331168
PMID:40285339
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12102511/
Abstract

BACKGROUND

During advance care planning, individuals can benefit from the support of a healthcare professional to navigate the intricacies of decision-making. There are specific roles to be played at each level of the process. Evidence is lacking about how professionals understand their role when conducting advance care planning conversations.

AIM

To explore how professionals perceive, define and describe their role when conducting advance care planning conversations.

DESIGN

We conducted this exploratory cross-sectional study in Switzerland from November 2019 to June 2020 by using semi-structured interviews, which were transcribed and thematically analysed with an inductive approach.

PARTICIPANTS

Fourteen professionals having received a training on advance care planning in Switzerland.

RESULTS

We identified three themes: (1) role typology; (2) individual-centred and (3) professional-centred aspects related to role ascription. Roles that professionals undertake were aggregated in two overarching categories, 'facilitators' and 'counsellors', according to whether they prioritise individual's capacity to decide for themselves or their need to receive guidance towards a particular decision. In practice, roles fluctuate between these categories, according to the individuals (to what extent they are informed and eager to engage in autonomous decisions, their communication capacity and desires) or the professional (main profession and involvement in the person's care plan).

CONCLUSIONS

Advance care planning requires professionals to be very adaptable and flexible in order to identify the role that they can play in each situation. Training needs to take into consideration this complexity and address it explicitly.

摘要

背景

在预先护理计划制定过程中,个人可以从医疗保健专业人员的支持中受益,以应对决策的复杂性。在该过程的每个层面都有特定的角色要发挥。关于专业人员在进行预先护理计划对话时如何理解自己的角色,目前缺乏证据。

目的

探讨专业人员在进行预先护理计划对话时如何看待、定义和描述自己的角色。

设计

我们于2019年11月至2020年6月在瑞士进行了这项探索性横断面研究,采用半结构化访谈,对访谈内容进行转录,并采用归纳法进行主题分析。

参与者

14名在瑞士接受过预先护理计划培训的专业人员。

结果

我们确定了三个主题:(1)角色类型学;(2)以个人为中心和(3)与角色归属相关的以专业为中心的方面。根据专业人员是优先考虑个人自己做决定的能力还是他们在特定决定上接受指导的需求,他们所承担的角色归纳为两个总体类别,即“促进者”和“顾问”。在实践中,根据个人情况(他们了解信息的程度以及参与自主决策的意愿、沟通能力和愿望)或专业人员情况(主要职业以及在个人护理计划中的参与程度),角色会在这些类别之间波动。

结论

预先护理计划要求专业人员非常具有适应性和灵活性,以便确定他们在每种情况下可以发挥的角色。培训需要考虑到这种复杂性并明确加以解决。

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本文引用的文献

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Supporting best practice in reflexive thematic analysis reporting in : A review of published research and introduction to the (RTARG).支持反思性主题分析报告的最佳实践:已发表研究的回顾及 (RTARG)介绍。
Palliat Med. 2024 Jun;38(6):608-616. doi: 10.1177/02692163241234800. Epub 2024 Mar 12.
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Advance Care Planning in Switzerland: Chances and challenges of delivering high-quality ACP in a small high-income, multilingual, federally organized country.瑞士的预先医疗指示规划:在一个小而高收入、多语言、联邦制国家中提供高质量 ACP 的机遇与挑战。
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How to enhance advance care planning research?如何加强临终关怀规划研究?
Palliat Med. 2023 May;37(5):660-662. doi: 10.1177/02692163231170658.
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Knowledge and Attitudes of Allied Health Professionals Towards End-Of-Life and Advance Care Planning Discussions With People With COPD: A Cross-Sectional Survey Study.医疗保健专业人员对 COPD 患者进行临终关怀和预先医疗指示讨论的知识和态度:一项横断面调查研究。
Am J Hosp Palliat Care. 2023 Aug;40(8):856-871. doi: 10.1177/10499091221134777. Epub 2022 Oct 20.
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A Mobile App for Advance Care Planning and Advance Directives (Accordons-nous): Development and Usability Study.一款用于预先护理规划和预先医疗指示的移动应用程序(Accordons-nous):开发与可用性研究。
JMIR Hum Factors. 2022 Apr 20;9(2):e34626. doi: 10.2196/34626.
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Implementing advance care planning in early dementia care: results and insights from a pilot interventional trial.在早期痴呆症护理中实施预先护理计划:一项试点干预试验的结果与见解
BMC Geriatr. 2021 Oct 19;21(1):573. doi: 10.1186/s12877-021-02529-8.
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What's Wrong With Advance Care Planning?预先护理规划存在什么问题?
JAMA. 2021 Oct 26;326(16):1575-1576. doi: 10.1001/jama.2021.16430.
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An interprofessional training to improve advance care planning skills among medicine, nursing, and social work students.一项跨专业培训,旨在提高医学、护理和社会工作专业学生的临终关怀规划技能。
J Interprof Educ Pract. 2020 Dec;21. doi: 10.1016/j.xjep.2020.100382. Epub 2020 Aug 31.
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Differences in advance care planning among nursing home care staff.养老院护理人员在预先护理计划方面的差异。
Nurs Ethics. 2021 Nov-Dec;28(7-8):1210-1227. doi: 10.1177/0969733021994187. Epub 2021 May 5.
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