Ziyar Ahdad, Bolufer Alexander, Littman Emily, Beg Shazia
University of California Irvine Health, Irvine, CA, United States.
University of Central Florida College of Medicine, Orlando, FL, United States.
J Clin Densitom. 2025 Jul-Sep;28(3):101578. doi: 10.1016/j.jocd.2025.101578. Epub 2025 Mar 19.
Osteoporosis represents a preventable and often treatable condition that is responsible for 1.5 million fractures annually in the United States. Proper patient knowledge represents a crucial aspect of disease management and has potential implications in treatment adherence and lifestyle modification. By examining how much patients know about their own diagnosis, their disease knowledge, and what resources they would like to use, we aim to lay the groundwork for developing efficient patient education resources.
We surveyed 52 individuals and collected data on demographics, bone density test results, disease knowledge, and educational sources both used and preferred. This was done to learn how much patients know about their condition on a fundamental level.
50% of participants diagnosed with osteoporosis correctly self-reported their condition, as did 21.1% diagnosed with osteopenia. Between the normal, osteopenia, and osteoporosis groups there were no significant differences between participants' scores on the patient knowledge questionnaire. The resources most used by patients were handouts/brochures and internet/personal research, and patients reported a preference for learning directly from their doctor/nurse.
Osteoporosis is associated with millions of fragility fractures occurring annually worldwide. Our study showed a consistent level of knowledge across patients with normal bone mineral density, osteopenia, and osteoporosis, suggesting the need for targeted education efforts, particularly for those with severe forms of the disease. We confirmed the invaluable role of medical personnel in teaching patients about bone density loss. It is through efficient learning that patients can be empowered to take charge of their health.
骨质疏松症是一种可预防且通常可治疗的疾病,在美国每年导致150万例骨折。患者具备正确的知识是疾病管理的关键方面,对治疗依从性和生活方式改变具有潜在影响。通过研究患者对自身诊断、疾病知识的了解程度以及他们希望使用的资源,我们旨在为开发有效的患者教育资源奠定基础。
我们对52名个体进行了调查,收集了有关人口统计学、骨密度测试结果、疾病知识以及所使用和偏好的教育资源的数据。这样做是为了了解患者在基本层面上对自身病情的了解程度。
50%被诊断为骨质疏松症的参与者正确地自我报告了病情,被诊断为骨质减少的参与者中这一比例为21.1%。在正常、骨质减少和骨质疏松组之间,参与者在患者知识问卷上的得分没有显著差异。患者最常使用的资源是手册/宣传册以及互联网/个人研究,并且患者表示倾向于直接从医生/护士那里获取信息。
骨质疏松症与全球每年数百万例脆性骨折相关。我们的研究表明,骨密度正常、骨质减少和骨质疏松的患者的知识水平一致,这表明需要开展有针对性的教育工作,特别是针对患有严重形式疾病的患者。我们证实了医务人员在教导患者有关骨质流失方面的宝贵作用。只有通过有效的学习,患者才能有能力掌控自己的健康。