法国2022年疫情期间确诊感染猴痘的顺性别男同性恋者获得医疗保健的协商情况及耻辱感体验:一项定性研究

Negotiating Access to Healthcare and Experience of Stigma Among Cisgender Gay Men Diagnosed with Mpox During the 2022 Epidemic in France: A Qualitative Study.

作者信息

Dos Santos Marie, Salcedo Manuela, Mora Marion, Siguier Martin, Velter Annie, Leclercq Vincent, Girard Gabriel

机构信息

Santercom, Sesstim, INSERM, UMR 1252, Marseille, France.

Aides, Paris, France.

出版信息

AIDS Behav. 2025 Apr 28. doi: 10.1007/s10461-025-04739-2.

Abstract

During the global Mpox epidemic of 2022/2023, the first cases in France were identified on 20 May 2022 among gay men. Scientific data on the experience of individuals concerned during the peak of the epidemic in France are scarce. This paper describes the results of the qualitative phase of the French ad hoc ANRS Mpox-SHS study, which was conducted in September/October 2022 among gay men diagnosed with Mpox.Study participants highlighted that they were not surprised at being diagnosed with Mpox, given that they were more exposed to sexually transmitted diseases in general because they had several partners and they were a target group of prevention campaigns.In contrast, the rapidity and extent of the disease's symptoms (pain, rashes, scabs, etc.) surprised many of them. All participants mentioned strong barriers to accessing appropriate care, the most-cited being stigma. Participants felt they were treated like "plague victims". Furthermore, most reported serious social and psychological consequences of being diagnosed with Mpox, arising from their fear that their sexual orientation and/or their sexual practices would be exposed. Moreover, respondents highlighted having an erratic Mpox care pathway, being sent from one health provider to another to receive care. Finally, participants explained that they implemented various negotiation strategies with their healthcare providers, sexual partners, and their employers during their illness.This study highlights the importance of using community health to better understand the development of an epidemic and its impact on affected individuals.

摘要

在2022/2023年全球猴痘疫情期间,法国于2022年5月20日在男同性恋者中发现了首例病例。关于法国疫情高峰期相关个体经历的科学数据匮乏。本文描述了法国国家艾滋病研究机构(ANRS)专门开展的猴痘-性健康与社会研究定性阶段的结果,该研究于2022年9月/10月在被诊断为猴痘的男同性恋者中进行。研究参与者强调,鉴于他们因伴侣众多而总体上更容易感染性传播疾病,且是预防宣传活动的目标群体,所以他们对被诊断出猴痘并不感到惊讶。相比之下,疾病症状(疼痛、皮疹、结痂等)出现的速度和程度让他们中的许多人感到惊讶。所有参与者都提到在获得适当治疗方面存在巨大障碍,最常被提及的是污名化。参与者觉得他们被当作“鼠疫受害者”对待。此外,大多数人报告称,被诊断出猴痘带来了严重的社会和心理后果,原因是他们担心自己的性取向和/或性行为会被曝光。而且,受访者强调猴痘的治疗途径不稳定,他们被从一个医疗服务提供者转到另一个那里接受治疗。最后,参与者解释说他们在患病期间与医疗服务提供者、性伴侣和雇主实施了各种协商策略。这项研究强调了利用社区健康来更好地理解疫情发展及其对受影响个体影响的重要性。

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