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本文引用的文献

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Advance Care Planning, Palliative Care, and End-of-life Care Interventions for Racial and Ethnic Underrepresented Groups: A Systematic Review.针对代表性不足的种族和族裔群体的预先医疗指示、缓和医疗和临终关怀干预措施:系统评价。
J Pain Symptom Manage. 2021 Sep;62(3):e248-e260. doi: 10.1016/j.jpainsymman.2021.04.025. Epub 2021 May 11.
2
Impact of structured advance care planning program on patients' wish items and healthcare utilization.结构化预立医疗计划项目对患者意愿项目及医疗保健利用的影响。
Ann Palliat Med. 2021 Feb;10(2):1421-1430. doi: 10.21037/apm-20-589. Epub 2020 Oct 20.
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Recommending a Do Not Resuscitate Order for Patients with Advanced Illness #366.为晚期疾病患者推荐“不要复苏”医嘱#366。
J Palliat Med. 2019 Jan;22(1):100-101. doi: 10.1089/jpm.2018.0556.
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The Surprise Question as a Prognostic Tool #360.作为一种预后工具的意外问题#360。
J Palliat Med. 2018 Oct;21(10):1529-1530. doi: 10.1089/jpm.2018.0348.
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Approximately One In Three US Adults Completes Any Type Of Advance Directive For End-Of-Life Care.大约每三个美国成年人中就有一个完成了任何类型的临终关怀预先指示。
Health Aff (Millwood). 2017 Jul 1;36(7):1244-1251. doi: 10.1377/hlthaff.2017.0175.
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REMAP: A Framework for Goals of Care Conversations.REMAP:照护目标对话框架
J Oncol Pract. 2017 Oct;13(10):e844-e850. doi: 10.1200/JOP.2016.018796. Epub 2017 Apr 26.
7
Advance care planning: Not a panacea.预先护理计划:并非万灵药。
Palliat Med. 2016 May;30(5):421-2. doi: 10.1177/0269216316642963.
8
Race Differences in Advance Directive Completion.生前预嘱完成情况的种族差异。
J Aging Health. 2017 Mar;29(2):324-342. doi: 10.1177/0898264316635568. Epub 2016 Jul 9.
9
Racial Differences in Processes of Care at End of Life in VA Medical Centers: Planned Secondary Analysis of Data from the BEACON Trial.退伍军人事务部医疗中心临终关怀过程中的种族差异:来自BEACON试验数据的计划二次分析
J Palliat Med. 2016 Feb;19(2):157-63. doi: 10.1089/jpm.2015.0311.
10
Prevalence of Advance Directives Among Older Adults Admitted to Intensive Care Units and Requiring Mechanical Ventilation.入住重症监护病房并需要机械通气的老年人中预先指示的患病率。
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预先护理计划:是什么、何时进行以及如何开展?

Advance Care Planning: What, When, and How?

作者信息

Toledo-Franco Lina, Peters John, Kamal Ashna Fatima, Traber Christina

机构信息

Assistant Professor, Director, Division of Palliative Medicine, Fellowship Director, Geriatric Medicine, Hospice and Palliative Medicine at SSM Health/Saint Louis University School of Medicine, St. Louis, Missouri.

Internal Medicine Resident, at SSM Health/Saint Louis University School of Medicine, St. Louis, Missouri.

出版信息

Mo Med. 2025 Mar-Apr;122(2):129-137.

PMID:40291535
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12021385/
Abstract

Advance care planning (ACP) is a fundamental part of the patient-provider relationship. It is a process that evaluates a person's values and determines preferences for care in various clinical scenarios, based on personal goals and expectations. ACP has two main goals: 1) identifying the surrogate decision maker; and 2) establishing the patient's goals of care for treatments or procedures which align with their wishes. ACP provides an opportunity to help patients and their families to prepare, on their own terms, for the changes brought by serious or progressive illness. This fosters a collaborative, therapeutic relationship in planning for the future.1 When addressing goals of care, it is essential to evaluate the perceived burden of certain procedures or life conditions such as depending on others for activities of daily living (ADLs) or living in a long-term care facility. As providers, we use patient history, laboratory data, exam findings, pathology reports, imaging studies, and more in making medical decisions for patients and recommending a plan of care. ACP can provide additional valuable information to guide patient-centered medical management. In this article, we will discuss the current state of goals-of-care conversations, compare the different ACP documents currently available, and provide guidance to providers on how to engage in these conversations. This includes addressing patient's values, wishes, and fears, without diminishing their sense of hope.

摘要

预先护理计划(ACP)是医患关系的一个基本组成部分。它是一个评估个人价值观并根据个人目标和期望确定在各种临床情况下护理偏好的过程。ACP有两个主要目标:1)确定替代决策者;2)确定患者对符合其意愿的治疗或程序的护理目标。ACP提供了一个机会,帮助患者及其家人按照自己的方式为严重或进行性疾病带来的变化做好准备。这有助于在规划未来时建立一种协作性的治疗关系。1在讨论护理目标时,评估某些程序或生活状况(如在日常生活活动(ADL)方面依赖他人或生活在长期护理机构)所感知到的负担至关重要。作为医疗服务提供者,我们利用患者病史、实验室数据、检查结果、病理报告、影像学研究等为患者做出医疗决策并推荐护理计划。ACP可以提供额外的有价值信息,以指导以患者为中心的医疗管理。在本文中,我们将讨论护理目标对话的现状,比较目前可用的不同ACP文件,并为医疗服务提供者提供有关如何进行这些对话的指导。这包括在不削弱患者希望感的情况下,探讨患者的价值观、愿望和恐惧。